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  • umbrahealthadvocacy.com

Janet Edwards

BS, BCPA
Private Patient Advocates, Inc.
Janet

Janet Edwards

BS, BCPA
Private Patient Advocates, Inc.
Advocate Location
Keller , TX 76248
Specialty
Survivor Support
TeleAdvocacy Available
Offers FREE Initial Consultation
Call Advocate Email Advocate
*Greater National Advocates Terms of Use Apply
How I Can Help
Assist breast cancer patients in:
- understanding their diagnosis and pathology report
- formulating questions for their physicians
- seeking second opinions
- understanding treatment recommendations, options and the physical and financial impact of those choices
Important Information About Me
  • I offer a FREE Initial Consultation
  • I offer TeleAdvocacy Service
  • I am insured
  • My geographical area of practice is United States
My Survivor Support Advocacy Qualifications
I am a survivor of Invasive Lobular Carcinoma (ILC) a rare form of breast cancer, Unidentified autoimmune disorder that has attached the GI tract, musculoskeletal system with severe osteoporosis and osteoarthritis.
I have been trained and/or certified as a peer mentor.
2024 - Board Certified Patient Advocate
2023 Dana Farber/Harvard Scientific Symposium – Guest as patient advocate
2022 & 2023 – Remote attendance of the San Antonio Breast Cancer Symposium
2021 Lynn Sage Conference Northwestern Medical
2021 University of Texas Southwestern - Simmons Cancer Research Advocacy Program
As an extrovert, self-advocacy came easily to me. My current goal is to help patients understand their diagnosis, their treatment choices, and the physical and financial impact of those choices.
Why I Became A Professional Health Care Advocate
From Patient to Patient Advocate

Patients deserve, and have the right, to explore options, understand treatment choices, and participate in their own healthcare. I have been there and now am here to help you.

On May 24, 2019, I heard words nobody wants to hear, “You have Invasive Lobular Carcinoma.” My surgeon provided two choices: lumpectomy with radiation or mastectomy without radiation. I had no idea which to choose because I did not know the risks or benefits of either.

Beyond the initial surgical choice, I also did not understand next steps, choices, timeline, or the physical and financial impact of those choices. I quickly learned a breast cancer diagnosis is a game of "hurry up and wait" and waiting is the hardest part.

From there, I embarked upon a mission to educate myself on breast cancer and conducted extensive research online published from highly respected organizations around the world. Topics included breast cancer subtypes, treatments, current research, clinical trials, inequity in healthcare and more. Attendance in various training has enabled participation in a diverse range of volunteer opportunities including grant application preparation, grant review and scoring.

Recently I became a Board Certified Patient Advocate and made the life-changing choice to leave corporate America to pursue full-time patient advocacy and created Private Patient Advocates, Inc., a Texas Corporation.
Contact Advocate
Formal Education
LeTourneau University, B.S. in Business Managment - Summa Cum Laude
Dallas Community College - A.A.S. - Phi Theta Kappa Society
Faith Experience
  • Catholicism
  • Christianity
  • Protestantism
  • Islamism/Muslim
  • Judaism
Additional Skills
As a natural extrovert with an insatiable curiosity, it was easy for me to advocate for my own breast cancer treatment. My goal is to help others find their voice to advocate for themselves, too. Every patient deserves patient-centered healthcare, and I can help you achieve it.
Professional Affiliations
2024 Grant/Stipend Recipient:
Lobular Breast Cancer Alliance (LBCA) – Stipend to attend 2024 International Invasive Lobular Breast Cancer Symposium in Belgium - September 2024
Susan G. Komen – Advocates in Science (AIS) - Full scholarship to attend 2024 Lynn Sage Breast Cancer Symposium in Chicago in October 2024.

2021 – Susan G Komen – Advocate in Science
Wrote three research papers listed below and subsequently attended remote Lynn Sage Conference by Northwestern Medical:
1. Incorporating Immunotherapy in Practice
2. Disparities in Breast Cancer – Strategies to Make Progress
3. Prevention and Treatment of Brain Tumors

2020 – Present UT Southwestern - Simmons Cancer Center Research Advocate Program (RAP)
2019 – Present Lobular Breast Cancer Alliance – Research and Advocacy Committee
2001 - 2008 American Red Cross Disaster Relief Volunteer - Worked 9/11, hurricane and flooding disasters