Sarah Johnson
New Mexico Licensed Massage Therapist #8145
Light Spirit Studio, L.L.C.
Sarah Johnson
New Mexico Licensed Massage Therapist #8145
Light Spirit Studio, L.L.C.
Advocate Location
Santa Fe , NM 87505
Specialty
Medical Guidance
Other Services
Survivor Support
TeleAdvocacy Available
Offers FREE Initial Consultation
*Greater National Advocates Terms of Use Apply
How I Can Help
In person, phone, or virtual sessions focus on:
Personal Navigation
—Deep History: Chronic complex illness often hits every system; you know that many evidentiary motifs of your story haven’t even been heard. Tell your story in detail this once. We’ll survey all the potential minor features that could help your care team to successfully identify what’s going on. I’ll highlight anything you’re saying that I know to be important in this niche, and I’ll help root out any possible evidence that might otherwise be missed.
—Assessments Walk-Through: Validated assessments make your case more clear by providing concrete measures accompanied by a framework for the conditions they support. I can provide guidance and support in finding, interpreting, and completing those that may likely be relevant.
—Advocacy-Triage: Develop an advocacy plan based on current unmet needs: navigational capacity, diagnoses, social support, medical team adequacy, and more.
–—Health Summary Composition: We’ll reframe and concisely summarize your history to lift clarity out of complexity, aiding your healthcare team in fully seeing you.
—Personalized Referral List: I’ll create a list of referrals to meet your health, financial/insurance, and location/travel/accessibility needs, drawing from my various local, national, and international networks of highly specialized, functionally-oriented healthcare practitioners and from trustworthy directories.
—Complex Care Support: We’ll make sure you understand your treatment plan and strategize to manage it well despite any barriers. Systematization and tracking can make a difference and can be built around the way your mind and life work. If needed, we’ll also engage your local supporters to help put these tools into action.
One-on-one Education & Resources
—hEDS &/or MCAS 101: You’ll learn to understand the basic systems-relationships, mechanics, and physiology relating various typical comorbidities. We’ll also discuss treatment pathways. Learning technical, non-diagnostic language and frameworks allows for stronger healthcare communication. Family and other supporters are welcome to join.
—Resource Finder: I’ll compile a list of trustworthy educational resources suitable for you, your kids, your workplace, your family & friends, and/or your healthcare team.
Group and Public Offerings
—Resource Group: monthly meetups (free; local only in Santa Fe, NM, USA)
—Private and Group Manual Self-Care Classes: manual care strategies for pain, neurovascular compression syndromes, and other concomitants of hypermobility and immune dysfunction
—Practitioner Education: I cannot yet provide CEUs, but am glad to share what I’ve come to understand about working with MCAS and hypermobility clients on the table
Requests for accommodation are welcome and will be met in any way possible. Shorter sessions, AI-assisted notetaking, reclining seating, communication adjustments, natural or dimmed lighting, avoidance of all possible fragrances, and many more are common requests and easily met in my practice.
Personal Navigation
—Deep History: Chronic complex illness often hits every system; you know that many evidentiary motifs of your story haven’t even been heard. Tell your story in detail this once. We’ll survey all the potential minor features that could help your care team to successfully identify what’s going on. I’ll highlight anything you’re saying that I know to be important in this niche, and I’ll help root out any possible evidence that might otherwise be missed.
—Assessments Walk-Through: Validated assessments make your case more clear by providing concrete measures accompanied by a framework for the conditions they support. I can provide guidance and support in finding, interpreting, and completing those that may likely be relevant.
—Advocacy-Triage: Develop an advocacy plan based on current unmet needs: navigational capacity, diagnoses, social support, medical team adequacy, and more.
–—Health Summary Composition: We’ll reframe and concisely summarize your history to lift clarity out of complexity, aiding your healthcare team in fully seeing you.
—Personalized Referral List: I’ll create a list of referrals to meet your health, financial/insurance, and location/travel/accessibility needs, drawing from my various local, national, and international networks of highly specialized, functionally-oriented healthcare practitioners and from trustworthy directories.
—Complex Care Support: We’ll make sure you understand your treatment plan and strategize to manage it well despite any barriers. Systematization and tracking can make a difference and can be built around the way your mind and life work. If needed, we’ll also engage your local supporters to help put these tools into action.
One-on-one Education & Resources
—hEDS &/or MCAS 101: You’ll learn to understand the basic systems-relationships, mechanics, and physiology relating various typical comorbidities. We’ll also discuss treatment pathways. Learning technical, non-diagnostic language and frameworks allows for stronger healthcare communication. Family and other supporters are welcome to join.
—Resource Finder: I’ll compile a list of trustworthy educational resources suitable for you, your kids, your workplace, your family & friends, and/or your healthcare team.
Group and Public Offerings
—Resource Group: monthly meetups (free; local only in Santa Fe, NM, USA)
—Private and Group Manual Self-Care Classes: manual care strategies for pain, neurovascular compression syndromes, and other concomitants of hypermobility and immune dysfunction
—Practitioner Education: I cannot yet provide CEUs, but am glad to share what I’ve come to understand about working with MCAS and hypermobility clients on the table
Requests for accommodation are welcome and will be met in any way possible. Shorter sessions, AI-assisted notetaking, reclining seating, communication adjustments, natural or dimmed lighting, avoidance of all possible fragrances, and many more are common requests and easily met in my practice.
Important Information About Me
- I offer a FREE Initial Consultation
- I offer TeleAdvocacy Service
- My geographical area of practice is most services available through TeleAdvocacy anywhere. For my home area of Northern NM, USA, I’ll help identify your most promising and accessible specialist hubs and/or optimize & coordinate local care while filling gaps via TeleHealth.
My Survivor Support Advocacy Qualifications
I am a survivor of Mast Cell Activation Syndrome, Consensus-2 basis with many typical comorbidities
For over fifteen years I was very ill. In the worst of it, I didn't think I'd survive the night. Complex barriers including acute trauma on top of CPTSD, sudden social isolation, and lacking the health to start earning money just as I came into adulthood and needed to do so meant no medical care, little support, even time unhoused. I understand the fear, the complexity, and the urgency that come with sudden descent into chronic illness. I'm here to provide shortcuts to the best information I've found and to support you in navigating diagnosis and care for chronic, complex conditions, whatever limitations we need to work around.
Why I Became A Professional Health Care Advocate
I spent twenty years looking for answers. I had been a competitive athlete in high school. Two years later, my legs burned and my breath rasped ascending the college library stairs. Deep fatigue and pain punished formerly typical workouts for five days. That was just the beginning. Soon my face and neck were perpetually swollen; parts went tingly or numb. My GI tract froze. Heat flooded me. My chest pounded. Terrifying episodes were so severe I went to bed accepting that I might not wake.
For ten years I lived on a tightwire, learning to control symptoms with whatever tools I found for myself. The next seven were a balance beam—still no medical aid, but fair control… a world of difference. Three years were a good sidewalk; a couple of practitioners believed me, and I could give them enough focusing language to help them help me. Now I have my life back. Dysautonomia, immune reactivity, even joint instability have all radically improved.
Research in these areas has been my dream since I was willing myself to survive each night; by now I owe so much to the process I can’t imagine more satisfying work. If I have come so far, what answers can we find for you?
For ten years I lived on a tightwire, learning to control symptoms with whatever tools I found for myself. The next seven were a balance beam—still no medical aid, but fair control… a world of difference. Three years were a good sidewalk; a couple of practitioners believed me, and I could give them enough focusing language to help them help me. Now I have my life back. Dysautonomia, immune reactivity, even joint instability have all radically improved.
Research in these areas has been my dream since I was willing myself to survive each night; by now I owe so much to the process I can’t imagine more satisfying work. If I have come so far, what answers can we find for you?
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