Kirsten Norgaard
United4Rare LLC
Kirsten Norgaard
United4Rare LLC
Advocate Location
Astoria , OR 97103
Specialty
Medical Guidance
Other Services
Survivor Support
TeleAdvocacy Available
Offers FREE Initial Consultation
*Greater National Advocates Terms of Use Apply
How I Can Help
I help patients and families facing rare, complex, or undiagnosed conditions navigate care systems, secure Medicaid or insurance approvals, find clinical trials and treatment options, and coordinate high-stakes care across providers and states. I also provide strategy and support for nonprofits and coalitions working on rare disease policy, emergency standards of care, and patient-centered programs. Certified in grief support, ADHD, stress management, and highly sensitive populations, I offer practical, realistic solutions to reduce overwhelm and help clients get the care they need.
Important Information About Me
- I offer a FREE Initial Consultation
- I offer TeleAdvocacy Service
- I am insured
- My geographical area of practice is International
My Survivor Support Advocacy Qualifications
I am a survivor of Adrenal Insufficiency, ADHD. Thyroid Disease, Fibromyalgia, Celiac, MTHFR, Fistula, PRPH2 Retinal Dystrophy, Hysterectomy, BHS, Chronic Migraine, Pelvic Congestive Syndrome, PTSD
know what it feels like to be in your shoes — overwhelmed by diagnoses, dismissed by doctors, and fighting for answers you shouldn’t have to beg for. I’ve lived with adrenal insufficiency, retinoblastoma, fibromyalgia, celiac disease, MTHFR mutation, PRPH2 retinal dystrophy, BHS, chronic migraine, pelvic congestive syndrome, PTSD, and complications like fistulas. I’ve battled both for myself and for my loved ones, and I know how lonely and exhausting that can be. I became an advocate because I believe no patient should have to navigate this system alone. Whether you need a voice in the room, help finding care, or just someone who truly understands — I’m here to stand with you.
Why I Became A Professional Health Care Advocate
When my son was born with a rare, life-threatening condition, I was thrown into a maze of medical emergencies, insurance denials, and endless dead ends. I knew no family should face that alone. For over 17 years, I’ve turned that fight into a mission — helping families secure care, find treatments, and change systems that fail them. As former Board President and Co-Founder of Adrenal Insufficiency United, I led successful legislative efforts to improve emergency care standards and expand access to life-saving treatments across states and nationwide. I stepped down to broaden my focus and help even more families facing rare and complex conditions.
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