Kirsten Norgaard
United4Rare LLC
Kirsten Norgaard
United4Rare LLC
Advocate Location
Astoria , OR 97103
Specialty
Survivor Support
TeleAdvocacy Available
Offers FREE Initial Consultation
*Greater National Advocates Terms of Use Apply
How I Can Help
I support patients and families facing rare, complex, or undiagnosed conditions by:
*Navigating care systems and medical teams
*Securing Medicaid and insurance approvals
*Finding clinical trials and treatment options
*Coordinating high-stakes care across providers, states, and countries
*Providing strategic support to nonprofits and coalitions on rare disease policy, emergency standards of care, and patient-centered programs
*Offering certified support in grief, ADHD, stress management, and care for highly sensitive populations
*Helping clients reduce overwhelm with practical, realistic solutions that get results
*Navigating care systems and medical teams
*Securing Medicaid and insurance approvals
*Finding clinical trials and treatment options
*Coordinating high-stakes care across providers, states, and countries
*Providing strategic support to nonprofits and coalitions on rare disease policy, emergency standards of care, and patient-centered programs
*Offering certified support in grief, ADHD, stress management, and care for highly sensitive populations
*Helping clients reduce overwhelm with practical, realistic solutions that get results
Important Information About Me
- I offer a FREE Initial Consultation
- I offer TeleAdvocacy Service
- I am insured
- My geographical area of practice is International
My Survivor Support Advocacy Qualifications
I am a survivor of Adrenal Fatigue, ADHD. Thyroid Disease, Fibromyalgia, Celiac, MTHFR, PRPH2 Retinal Dystrophy, Hysterectomy, BHS, Chronic Migraine, Pelvic Congestive Syndrome, PTSD
Why I Became A Professional Health Care Advocate
Why I Became a Professional Health Care Advocate:
My journey into advocacy didn’t start in a classroom or a boardroom — it started in a pediatric ICU, watching my newborn son fight for his life with a rare, life-threatening adrenal condition. I was a new mom suddenly thrust into emergency rooms, medical helicopters, and endless denials from insurance and Medicaid. I learned firsthand how impossible it feels to navigate a system that isn’t built for rare or complex cases.
I fought for my son’s care, but I quickly realized we weren’t alone. I met family after family, patient after patient, facing the same broken system — left to figure it out on their own. That’s when I co-founded Adrenal Insufficiency United (AIU) and stepped into national advocacy work. For over 15 years as Board President, I worked alongside families, clinicians, and legislators to pass laws, establish emergency care protocols, and expand treatment access nationwide.
But advocacy isn’t just about policy. It’s personal.
I’m also a rare disease patient. I’ve survived adrenal issues, thyroid disease, fibromyalgia, celiac, PRPH2 retinal dystrophy, MTHFR mutation, pelvic congestive syndrome, PTSD, and complex post-surgical complications. I know what it’s like to be dismissed, to lose trust in the system, and to feel isolated in your fight for answers.
That’s why I expanded my work beyond AIU — to help patients, families, and nonprofits facing the same impossible roadblocks. Whether it’s finding the right doctor, securing Medicaid approval, coordinating out-of-state care, or helping build a movement for change, I’ve dedicated my life to making sure no patient fights alone.
My mission is simple: to stand in the gap between patients and the systems that fail them — with real-world experience, insider knowledge, and unwavering advocacy.
My journey into advocacy didn’t start in a classroom or a boardroom — it started in a pediatric ICU, watching my newborn son fight for his life with a rare, life-threatening adrenal condition. I was a new mom suddenly thrust into emergency rooms, medical helicopters, and endless denials from insurance and Medicaid. I learned firsthand how impossible it feels to navigate a system that isn’t built for rare or complex cases.
I fought for my son’s care, but I quickly realized we weren’t alone. I met family after family, patient after patient, facing the same broken system — left to figure it out on their own. That’s when I co-founded Adrenal Insufficiency United (AIU) and stepped into national advocacy work. For over 15 years as Board President, I worked alongside families, clinicians, and legislators to pass laws, establish emergency care protocols, and expand treatment access nationwide.
But advocacy isn’t just about policy. It’s personal.
I’m also a rare disease patient. I’ve survived adrenal issues, thyroid disease, fibromyalgia, celiac, PRPH2 retinal dystrophy, MTHFR mutation, pelvic congestive syndrome, PTSD, and complex post-surgical complications. I know what it’s like to be dismissed, to lose trust in the system, and to feel isolated in your fight for answers.
That’s why I expanded my work beyond AIU — to help patients, families, and nonprofits facing the same impossible roadblocks. Whether it’s finding the right doctor, securing Medicaid approval, coordinating out-of-state care, or helping build a movement for change, I’ve dedicated my life to making sure no patient fights alone.
My mission is simple: to stand in the gap between patients and the systems that fail them — with real-world experience, insider knowledge, and unwavering advocacy.
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