How I Can Help
"I can provide direct resources and contacts
Clinical Trial Referrals
Patient Advisory Board Opportunities Referrals"
Important Information About Me
- I offer a FREE Initial Consultation
- I offer TeleAdvocacy Service
- My geographical area of practice is Midwest
My Survivor Support Advocacy Qualifications
I am a survivor of Scleroderma, Pulmonary Fibrosis, Hypertension, Raynaud Syndrome, Amputation, Mental Health, Arthritis
I have been trained and/or certified as a peer mentor.
"Master Advocacy Training
RDLA Advocacy Training
Mental Health Training
Why I Became A Professional Health Care Advocate
Demi Montgomery is a speaker for systematic sclerosis and the rare disease community. Creator of BIPOC programs, For Love of Children Board Member as well as the driving force behind State Bill 133. Demi resides in Dayton, Ohio where she is a wife, mother and community volunteer. Demi is also the creator of Jacob’s Hugs Registry and The Waiting Room Entertainment. She is a speaker/collaborator/moderator for Patients Rising, Brain Injury Network and the National Organization for Rare Disorders with a feature film on the Disorder Channel “Amy & Demi’s Scleroderma Journey”. She is a PFF Ambassador and the President of the Patients Senate at Patients Rising. Her responsibilities are to increase all disabilities awareness within her community and surrounding areas; by obtaining proclamations annually, program writing and volunteering for fundraising events. She attends capitol hill days and meets with public officials regularly to advocate for research funding. She also creates interactive content for the disabled community at large. She is an alumnus of University of Phoenix with an AA in Human Service Management and trained in Mental Health First Aid. She is also the recipient of the National Scleroderma Foundation 2020 Advocate of the Year Award and 2022 Program of the Year award for BIPOC (Black, Indigenous, People of Color)