Victoria Killian

BCPA
Chronically Advocating
Victoria

Victoria Killian

BCPA
Chronically Advocating
Advocate Location
Woodland Hills , CA 91364
Specialty
Medical Guidance
Other Services
Survivor Support
TeleAdvocacy Available
Offers FREE Initial Consultation
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*Greater National Advocates Terms of Use Apply
How I Can Help
Patient advocacy for individuals, families, and caregivers navigating complex chronic illness, rare disease, or undiagnosed conditions.

Most of my clients are dealing with at least one of these situations:
• Seeing multiple specialists who are not communicating with each other
• Facing insurance denials or coverage barriers
• Searching for a diagnosis after years of unanswered questions
• Feeling too exhausted or overwhelmed to keep pushing alone

What I do:

• Care Coordination — I organize your care across providers and institutions. I identify what is missing. I clarify the next steps when the path forward is unclear.

• Insurance Navigation and Appeals — I read and interpret your benefits. I track your claims and denials. I prepare formal appeals, grievances, and expedited review requests.

• Medical Record Review — I review your records and build a clear timeline. I identify documentation that is missing, incomplete, or inconsistent.

• Communication Support — I write letters, call scripts, and structured notes for your providers and insurance company. You do not have to figure out what to say or how to say it.

• Finding the Right Specialists — I identify appropriate specialists and centers of excellence. I research your conditions and compile relevant information in a format you can use.

• Appointment Preparation — I help you prepare questions and priorities before appointments. I write structured talking points so you can focus on the visit instead of trying to remember everything.
Important Information About Me
  • I offer a FREE Initial Consultation
  • I offer TeleAdvocacy Service
  • I am insured
  • My geographical area of practice is United States
My Survivor Support Advocacy Qualifications
I am a survivor of Spondylitis, Gastroparesis, Primary Immune Deficiency (PID), Chronic Migraine, Narcolepsy, Long COVID, ME/CFS, MCAS, Connective Tissue Disease, Rare Disease
I became disabled at age 12. For years, I was misdiagnosed. Eventually I learned I was living with multiple chronic and rare conditions simultaneously.

I know what it feels like to be dismissed, to wait years for answers, and to manage a healthcare system that was not designed for people with complex needs.

I became a Board Certified Patient Advocate (BCPA) to do this work formally and professionally. I combine direct lived experience with systems-level knowledge of how healthcare and insurance actually function.

My role is not to make decisions for you. My role is to make sure you have the information, documentation, and support to make your own decisions clearly.
Why I Became A Professional Health Care Advocate
My work in patient advocacy is grounded in both lived experience and professional training.

I have navigated the healthcare system as a patient with multiple chronic and rare conditions, including complex care coordination, insurance denials, and prolonged diagnostic uncertainty. This experience gave me direct insight into how healthcare and insurance systems function.

Over time, I became a resource for others facing similar challenges; helping them organize care, understand their coverage, and move forward when they felt stuck in the system.

I formalized that work by becoming a Board Certified Patient Advocate (BCPA) and building an independent practice focused on complex cases.

Today, I apply both lived experience and systems-level understanding to help clients navigate healthcare with clearer strategy, stronger documentation, and more effective communication.
Contact Advocate
Formal Education
California State University Northridge, B.S. Business Management
Additional Skills
Conditions and Diagnoses

• Ehlers-Danlos Syndrome (EDS), hypermobile EDS (hEDS), classical EDS (cEDS), vascular EDS (vEDS)
• Connective tissue disorders, hypermobility spectrum disorders (HSD)
• Joint hypermobility, frequent dislocations, subluxations, fragile skin, easy bruising
• Postural Orthostatic Tachycardia Syndrome (POTS)
• Dysautonomia, autonomic dysfunction, orthostatic intolerance
• Passing out or near-fainting when standing, heart racing when upright, dizziness on standing
• Mast Cell Activation Syndrome (MCAS), mast cell disorder, histamine intolerance
• Unexplained allergic reactions, flushing, hives, anaphylaxis without known trigger
• Primary Immune Deficiency (PID)
• Common Variable Immune Deficiency (CVID)
• Selective Antibody Deficiency (SAD), specific antibody deficiency
• Hypogammaglobulinemia, low immunoglobulin levels, frequent infections
• Gastroparesis, gastric emptying delay, digestive tract paralysis
• Nausea, vomiting, inability to tolerate food, delayed gastric emptying
• Tube feeding, enteral nutrition, TPN (total parenteral nutrition) navigation
• Long COVID, Post-Acute Sequelae of SARS-CoV-2 (PASC)
• Brain fog, fatigue, post-exertional malaise after COVID
• Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS)
• Severe fatigue not relieved by rest, post-exertional malaise (PEM), crash after activity
• Spondylitis, Ankylosing Spondylitis (AS), axial spondyloarthritis (axSpA)
• Non-radiographic axial spondyloarthritis (nr-AxSpA), inflammatory back pain
• Rheumatoid Arthritis (RA), seronegative arthritis, inflammatory arthritis
• Chronic Migraine, vestibular migraine, intractable headache disorders
• Narcolepsy, hypersomnia, excessive daytime sleepiness, sleep disorders
• Rare disease, undiagnosed conditions, diagnostic odyssey
• Years without a diagnosis, multiple specialists with no answers
• Multi-system illness, overlapping conditions, high-complexity chronic illness
• Autoimmune disease, systemic autoimmune overlap, undifferentiated connective tissue disease (UCTD)

Insurance and Financial Navigation

• California Department of Managed Health Care (DMHC) complaints
• Independent Medical Review (IMR), California external review
• California Department of Insurance (CDI) complaints
• ACA marketplace plan navigation and appeals
• Employer-sponsored health plan appeals (ERISA)
• Prior authorization denials
• Step therapy overrides, fail-first protocol challenges
• Medical necessity appeals
• Peer-to-peer review preparation
• Surprise billing disputes, No Surprises Act claims
• Pharmaceutical manufacturer copay programs
• Underinsured patient navigation
• Uninsured patient navigation
• Specialty drug access, specialty pharmacy navigation

Clinical Knowledge and Diagnostic Specifics

• IVIG (intravenous immunoglobulin) access, coverage appeals, and prior authorization for immune deficiency
• SCIG (subcutaneous immunoglobulin) access and insurance navigation
• Understanding of tilt table test limitations in dysautonomia and POTS diagnosis; ability to support clients in challenging unnecessary or inappropriate testing
• Biologic medication prior authorization and appeals
• Specialty medication step therapy and fail-first appeals
• Rare disease diagnostic criteria and supporting documentation requirements
• Multi-specialty coordination: immunology, rheumatology, gastroenterology, cardiology, neurology, pulmonology

Populations Served

• LGBTQIA+ patients
• Disabled patients, including those with episodic and invisible disabilities
• Neurodivergent patients: autism (ASD), ADHD, AuDHD, sensory processing differences
• Patients in larger bodies navigating weight bias in medical settings
• Patients who have been dismissed, gaslit, or told their symptoms are not real
• Patients with communication barriers or difficulty self-advocating in appointments
Professional Affiliations
• Board Certified Patient Advocate, Patient Advocate Certification Board
• Member, PULSE Center for Patient Safety Education & Advocacy
• Member, Alliance of Professional Health Advocates
• Member, HealthAdvocateX
• Member, NIH HEAL T90/R90 Lived Experience Advisory Group
• Board Member, Advocacy Director, and Co-leader Gastroparesis Support Group, G-PACT
• Member California Advocacy Team (CAT), U.S. Pain Foundation
• Member Advocacy Committee, Spondylitis Association of America
• Member California State Advocacy Committee, Arthritis Foundation