Victoria Killian

BCPA
Chronically Advocating
Victoria

Victoria Killian

BCPA
Chronically Advocating
Advocate Location
West Hills , CA 91307
Specialty
Medical Guidance
Other Services
Survivor Support
TeleAdvocacy Available
Offers FREE Initial Consultation
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*Greater National Advocates Terms of Use Apply
How I Can Help
Patient advocacy for individuals, families, and caregivers navigating complex chronic illness, rare disease, or undiagnosed conditions.

Most clients I work with are managing multi-specialty care, unresolved diagnoses, or insurance barriers such as denials and access issues.

• Care Coordination: Organizing care across providers, identifying gaps, and aligning next steps in complex or fragmented care plans

• Insurance Navigation & Appeals: Interpreting benefits, organizing claims and denials, and preparing structured appeals and grievances

• Medical Record Review & Organization: Reviewing records, building clear timelines, and identifying missing or incomplete documentation

• Communication Support: Drafting messages, call scripts, and documentation for providers and insurance companies

• Specialist Identification & Research: Identifying appropriate specialists and centers of excellence; compiling relevant condition and treatment information

• Financial & Resource Support: Reviewing medical bills, identifying cost issues, and locating financial assistance programs

• Appointment Preparation: Preparing questions, priorities, and structured talking points to improve clarity and outcomes during visits
Important Information About Me
  • I offer a FREE Initial Consultation
  • I offer TeleAdvocacy Service
  • I am insured
  • My geographical area of practice is United States
My Survivor Support Advocacy Qualifications
I am a survivor of Spondylitis, Gastroparesis, Primary Immune Deficiency (PID), Chronic Migraine, Narcolepsy, Long COVID, ME/CFS, MCAS, Connective Tissue Disease, Rare Disease
I became disabled at 12 and spent years misdiagnosed, later learning I was living with multiple chronic and rare conditions. That journey taught me how isolating and overwhelming the healthcare system can be, and why no one should face it alone.

Today, I am a Board Certified Patient Advocate who combines lived experience with professional expertise to guide patients through insurance, medical, and systemic barriers. My role is to stand beside survivors so they feel heard, supported, and empowered to get the care they deserve.
Why I Became A Professional Health Care Advocate
My work in patient advocacy is grounded in both lived experience and professional training.

I have navigated the healthcare system as a patient with multiple chronic and rare conditions, including complex care coordination, insurance denials, and prolonged diagnostic uncertainty. This experience gave me direct insight into how healthcare and insurance systems function.

Over time, I became a resource for others facing similar challenges; helping them organize care, understand their coverage, and move forward when they felt stuck in the system.

I formalized that work by becoming a Board Certified Patient Advocate (BCPA) and building an independent practice focused on complex cases.

Today, I apply both lived experience and systems-level understanding to help clients navigate healthcare with clearer strategy, stronger documentation, and more effective communication.
Contact Advocate
Formal Education
California State University Northridge, B.S. Business Management
Additional Skills
• Systems Translation: Breaking down complex healthcare and insurance systems into clear, actionable steps for patients and caregivers

• Complex Care Coordination: Managing care across multiple specialists, institutions, and care plans with a focus on continuity and follow-through

• Insurance Expertise: Strong focus on California insurance plans and regulators, with experience navigating employer-sponsored (ERISA) and ACA marketplace plans nationwide

• Inclusive Advocacy: Providing care navigation that is informed, respectful, and accessible for LGBTQIA+, disabled, neurodivergent individuals, and people in larger bodies

• High-Complexity Case Experience: Supporting individuals with multi-system and overlapping conditions, including Ehlers-Danlos Syndrome (EDS, hEDS), Connective Tissue Disorders, Postural Orthostatic Tachycardia Syndrome (POTS), Dysautonomia, Long COVID, Mast Cell Activation Syndrome (MCAS), Primary Immune Deficiency (e.g. CVID, SAD, and others), Gastroparesis, Digestive Tract Paralysis, Spondylitis, Rheumatoid Arthritis (RA), Migraine, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), and many others

• Legislative & Policy Background: Experience in patient advocacy at the systems level, including public education and healthcare access initiatives
Professional Affiliations
• Board Certified Patient Advocate, Patient Advocate Certification Board
• Member, PULSE Center for Patient Safety Education & Advocacy
• Member, Alliance of Professional Health Advocates
• Member, HealthAdvocateX
• Member, NIH HEAL T90/R90 Lived Experience Advisory Group
• Board Member and Co-leader Gastroparesis Support Group, G-PACT
• Member California Advocacy Team (CAT), U.S. Pain Foundation
• Member Advocacy Committee, Spondylitis Association of America
• Member California State Advocacy Committee, Arthritis Foundation