Mallory Frazier

Board Certified Patient Advocate, M.S. in Psychoneuroimmunology
Mallory

Mallory Frazier

Board Certified Patient Advocate, M.S. in Psychoneuroimmunology
Advocate Location
Herndon , VA 20170
Specialty
Special Care & Aging
Other Services
Survivor Support
TeleAdvocacy Available
Offers FREE Initial Consultation
Medicare Clients Welcome
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*Greater National Advocates Terms of Use Apply
How I Can Help
With a background in psychoneuroimmunological research and lived Immunodeficiency experience, I love nothing more than helping solve a medical mystery. If you have ever heard “Your tests are all normal” while you are falling apart, I’m your gal. I love working with patients who are motivated to find their diagnosis and/or improve their quality of life while working with limited energy. Through my Care Navigation and Advocacy practice, I offer expert empathetic guidance on:

Translating medical jargon to plain English: Having been on all three sides of medicine (research, healthcare, and patient), I’m skilled in helping patients understand complicated, confusing, and conflicting information.

Connect with knowledgeable and caring providers: Drill down to find caring, empathetic providers with expertise in your disease or suspected disease.

Communicate more effectively with your care team: Learn how to prepare for medical appointments, speak to providers in a way they can really hear, and ensure you are able to identify treatments that help (or hurt).

Help preparing for appointments: Doctors have at most 15 minutes with each patient. I can help you prepare to optimize your time. We will work on a succinct and targeted medical history, prioritization of questions/concerns, and collecting concrete irrefutable data.

Pace your Healthcare Journey: Living with chronic and complex illness already limits your energy. Add 50,000 doctors appointments on top of that and burnout is inevitable. We will work together to make a prioritization plan and focus on only two-three paths at a time. We will plan breaks before and after major tests and procedures to ensure you have energy to live.

Receive personalized, empathetic guidance
No one should have to do this alone. I offer support informed by both clinical expertise and personal experience.
Important Information About Me
  • I offer a FREE Initial Consultation
  • I offer TeleAdvocacy Service
  • I am insured
  • My geographical area of practice is in the DC/Md/Va Area and work with patients via only Telehealth in Eastern, Central, and Mountain time zones.
My Survivor Support Advocacy Qualifications
I am a survivor of Common Variable Immunodeficiency (CVID; a Primary Immunodeficiency), Psoriasis, Chronic/Recurrent infections, TMJD, Migraines, Chronic Pain, Endometriosis, Asthma, Postpartum Depression/Panic, ADHD, Depression with Suicidal Ideation, Anxiety/Panic, IBS
I have been trained and/or certified as a peer mentor.
I spent over 8 years as a direct peer mentor and trainer when working in clinical research. 3 years of that I was the Manager of Training and Development for a nationwide embedded clinical research company. During this time I developed, launched, and maintained a "Coach the Coach" program. This program trained over 30 peer mentors and trainers who in turn trained new employees.
I am a survivor of a Primary Immunodeficiency, specifically CVID. Like many with CVID, I was not diagnosed until later in life. Living almost 40 years with chronic and recurrent infections left scars and caused other conditions such as scarred lungs, asthma, depression with suicidal ideation, and anxiety.
As a child, I was often sick but able to function adequately until contracting pertussis. Though I suspected CVID fairly early, it took an additional 12 years to get diagnosed and start treatment. Ultimately, CVID interfered in my ability to safely work with patients in person.
I've lived the undiagnosed life, and all the frustrations that come with that. I've heard providers say "There is nothing I can do to help you," "It's not that serious," "Try losing weight," and other unhelpful phrases. I have worked hard to heal mentally and physically since my diagnosis and have turned frustration and anger to empathy and advocacy.
Why I Became A Professional Health Care Advocate
My personal journey to diagnosis and treatment of CVID took 12 years. I knew what I had 9 years in but still had to advocate for the additional time to get treated. I thought "if it takes me this long and this much work and suffering, what hope does someone with no background in healthcare and/or science have?" So I transitioned to a new career and it is the most rewarding thing I've ever done.
Contact Advocate
Formal Education
University of Mary Washington, BS, Sensory and Perception Psychology
Texas A&M University, MS, Psychoneuroimmunology
Faith Experience
  • Christianity
  • Atheism
Additional Skills
Adult Primary Immunodeficiency, Common Variable Immunodeficiency, Vaccine Challenge
Environmental Allergies and Immunotherapy
Chronic Illness, pain, and fatigue of unclear or complex origin
Medical Mysteries
General Surgery Preparation and Recovery
Ehlers-Danlos Syndromes (EDS), including hypermobile EDS (hEDS)
Postural Orthostatic Tachycardia Syndrome (POTS) and other forms of dysautonomia
Mast Cell Activation Syndrome (MCAS)
Hyperacusis
Nociplastic Pain (Also known as central sensitization to pain)
Craniocervical instability and other spinal instabilities
Compression syndromes (e.g., Nutcracker, May-Thurner, median arcuate ligament syndrome)
Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS)
Overlapping or undiagnosed multisystem conditions
Understanding and adapting to new diagnoses
Complex/Chronic Illness Navigation
Translation of medical jargon to plain English
Rare Disease
Difficulty accessing knowledgeable, coordinated medical care
Pregnancy and childbirth while navigating a chronic illness
Therapy: Physical, Occupational, Speech
Endometriosis
Recurrent/Chronic/Embedded Urinary Tract Infections (UTIs)
Incomplete Spinal Cord Injury (SCI)
Ambulatory wheelchair users and access to other mobility devices
Autoimmune Disorders such as Psoriasis, Psoriatic arthritis, Celiac disease, Hashimoto’s thyroiditis, Crohn's disease, Ulcerative colitis, and diabetes
Service Animal/Service Dog access and training
Temporomandibular Joint Disorder
Peripheral Arterial Disease (PAD)
Abdominal Aortic Aneurysm (AAA)
Opioid Alternatives to Chronic Pain Management
Neurological Disorders: Incomplete Spinal Cord Injury (SCI), Traumatic Brain Injury (TBI), Migraines, headache disorders, Peripheral Neuropathy, Carpal Tunnel Syndrome
Neurodivergence: ADHD, Autism Spectrum Disorder, Twice Exceptional Learners, dyslexia, Dysgraphia, Tourette Syndrome and Tic Disorders, Sensory Processing Disorder
Mental Illness: Depression, Anxiety, Treatment Resistant Depression, Post-Partum Depression, Perinatal Depression, Postpartum Anxiety/Psychosis, Panic Disorder, Post Traumatic Stress Disorder (PTSD), Medical Trauma, Obsessive Compulsive Disorder
Private Insurance Co-pay assistance
Medicare
Professional Affiliations
Board Certified Patient Advocate
Rare Chronic Illness Patient
Certified Clinical Research Coordinator (past)
Immunodeficiency Foundation