Rebecca Share-Howard
BCPA
Whole Story Advocacy
Rebecca Share-Howard
BCPA
Whole Story Advocacy
Advocate Location
Marina del Rey , CA 90292
Specialty
Medical Guidance
Other Services
Survivor Support
TeleAdvocacy Available
Offers FREE Initial Consultation
*Greater National Advocates Terms of Use Apply
How I Can Help
As a person with lifelong lived experience with many types of chronic pain, I have dedicated my advocacy practice to serving those with all different forms of chronic pain and complex illness.
My approach considers the whole story: your medical history, lived experience, physical limitations, daily functioning, emotional well-being, support system, and personal goals.
Every client gets what every patient deserves: someone who knows the system, has the time to listen, and answers only to you. I'm the person that is always in your corner in a system that's difficult to face alone.
Medical Story & Records Review:
- Review and organize medical records, diagnoses, medications, treatments, and testing histories
- Identify missing information, inconsistencies, and questions that may warrant further discussion with your healthcare providers
- Create comprehensive yet concise medical summaries that communicate your history and lived experience, particularly when seeing new specialists or navigating hospital care
Care Coordination:
- Facilitate communication and information sharing among specialists, primary care providers, and other members of your healthcare team
- Help organize and track appointments, testing, referrals, treatment plans, and follow-up recommendations.
- Develop actionable plans to address gaps in care and support continuity across multiple providers and healthcare settings.
Healthcare Navigation:
- Help identify appropriate specialists and second-opinion opportunities
- Help finding alternative or unexplored treatments
- Support clients navigating diagnostic uncertainty and complex medical cases
- Connect clients with relevant community resources, support groups, caregiver support resources, disability services, pain programs, and much more
Research & Decision Support:
- Research diagnoses, medical conditions, diagnostic tests, treatment approaches, and emerging options using credible sources
- Help clients understand their options, weigh relevant considerations, and prepare for informed discussions with their healthcare professionals
- Support patients facing difficult decisions about medications, procedures, surgeries, or other aspects of care
Education & Self-Advocacy:
- Explain medical terminology, healthcare processes, pain education, and information about complex conditions in accessible language
- Help clients develop strategies to communicate concerns, ask effective questions, and participate confidently in healthcare decisions
- Provide education about patient rights and strategies for advocating effectively in medical settings
Appointment Support:
- Prepare for appointments by organizing medical histories, identifying priorities, and developing questions
- Attend medical appointments in person or virtually to provide support, take notes, facilitate communication, and help ensure important concerns are addressed
- Create after-visit summaries, clarify recommended next steps, and assist with follow-through
My approach considers the whole story: your medical history, lived experience, physical limitations, daily functioning, emotional well-being, support system, and personal goals.
Every client gets what every patient deserves: someone who knows the system, has the time to listen, and answers only to you. I'm the person that is always in your corner in a system that's difficult to face alone.
Medical Story & Records Review:
- Review and organize medical records, diagnoses, medications, treatments, and testing histories
- Identify missing information, inconsistencies, and questions that may warrant further discussion with your healthcare providers
- Create comprehensive yet concise medical summaries that communicate your history and lived experience, particularly when seeing new specialists or navigating hospital care
Care Coordination:
- Facilitate communication and information sharing among specialists, primary care providers, and other members of your healthcare team
- Help organize and track appointments, testing, referrals, treatment plans, and follow-up recommendations.
- Develop actionable plans to address gaps in care and support continuity across multiple providers and healthcare settings.
Healthcare Navigation:
- Help identify appropriate specialists and second-opinion opportunities
- Help finding alternative or unexplored treatments
- Support clients navigating diagnostic uncertainty and complex medical cases
- Connect clients with relevant community resources, support groups, caregiver support resources, disability services, pain programs, and much more
Research & Decision Support:
- Research diagnoses, medical conditions, diagnostic tests, treatment approaches, and emerging options using credible sources
- Help clients understand their options, weigh relevant considerations, and prepare for informed discussions with their healthcare professionals
- Support patients facing difficult decisions about medications, procedures, surgeries, or other aspects of care
Education & Self-Advocacy:
- Explain medical terminology, healthcare processes, pain education, and information about complex conditions in accessible language
- Help clients develop strategies to communicate concerns, ask effective questions, and participate confidently in healthcare decisions
- Provide education about patient rights and strategies for advocating effectively in medical settings
Appointment Support:
- Prepare for appointments by organizing medical histories, identifying priorities, and developing questions
- Attend medical appointments in person or virtually to provide support, take notes, facilitate communication, and help ensure important concerns are addressed
- Create after-visit summaries, clarify recommended next steps, and assist with follow-through
Important Information About Me
- I offer a FREE Initial Consultation
- I offer TeleAdvocacy Service
- I am insured
- My geographical area of practice is In-personal and virtual advocacy services in Greater Los Angeles Area, virtual advocacy nationally across US
My Survivor Support Advocacy Qualifications
I am a survivor of I am a survivor of Chronic Pain, Chronic Back Pain, Hypermobility Spectrum Disorder, Mast Cell Activation Syndrome, POTS, Interstitial Cystitis, Chronic Migraines, Occipital Neuralgia, Intercostal Neuralgia, Sacroiliitis, IBS, Acromegaly, CPTSD
Why I Became A Professional Health Care Advocate
My journey began when I was 10 years old and diagnosed with chronic pain, which, over the years advanced and created or amplified many other health problems. I have never fit neatly into one easily diagnosable "box", and I am on a continual journey of learning about my pain. Things changed again when I had my first spinal surgery at age 18, after which I developed severe, restricting chronic back pain that I live with to this day. As I aged I faced more surgeries, accumulated more health problems, including more types of chronic pain, tried more treatments, and saw more specialists, I began to experience the same problems again and again: gaps in care through which those with chronic pain or complex illness too often fell, how frequently my voice and so many others' weren't being heard, medical fragmentation that affected my care, and medical mistakes.
After years of work, I started Whole Story Advocacy to put that hard-earned lived experience — alongside formal training and hands-on clinical work — to dedicate myself to the people I understand the best: people with chronic pain and complex illness — the people who fall through the cracks.
After years of work, I started Whole Story Advocacy to put that hard-earned lived experience — alongside formal training and hands-on clinical work — to dedicate myself to the people I understand the best: people with chronic pain and complex illness — the people who fall through the cracks.
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