I'm Full! Posting to Connect and Get a List for Referrals

Hi! I am FULL. Very full. Likely won't have space again for clients till sept or oct, and launching online courses soon for EDSEers.
I'd like to use the chance to expand my EDS patient advocate network to be able to make good referrals for particular needs. If you specialize in EDS and connective tissue disorders (education, coaching, appointment preparation and communication strategies, and helping patients make connections for their bodies in and out of traditional clinical care) I'd love to speak with you further!

PS: Annmarie requested I put this here. Full disclosure I really may not be able to reply for a week or so with how crazy it's gotten here so I'm hoping to reach people, collect names, and then try to work on meeting and replying to people. Thanks for patience!
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AnnMarie AnnMarie Cross 28 days ago
Hi, Rachel! Given the new updated EDS landing page, would you still like me ot tag EDSer's here? I'm very happy to do so, but not if it's going to overwhelm you unneccesarily.
Rachel Lee Rachel Lee Davis 21 day ago
However helps network people. I'm carving out some time to sit and coordinate with replies here and FB in a week or two :)
Xena Xena Wolfe 22 days ago
I’d love to connect you with my business partner, who would be the perfect person to help you with this. You can reach her at jrichards@porchlightadvocates.com
Rachel Lee Rachel Lee Davis 21 day ago
Thank you! I'm carving some time to reach out to the many connections here and on FB that came through. Really wonderful list. I'll get back to ya'll as soon as possible :)
Zhane Zhane Fugate 21 day ago
Hello! I currently have a few openings. Specializing in diagnostic navigation, symptom pattern mapping, mayo clinic prep. Experience with EDS, MCAS, POTS, rare/hard to diagnose.
Hanah Hanah Yendler 21 day ago
Hello Rachel! I think I responded to your post on FB, but haven't had a chance to reach out — the patient advocacy company that I work for, Norbella Health, specializes in EDS.

You can check out our team here:
www.norbellahealthadvocates.com/team

I am about to go on leave, so I'll circle back around to you when I get back, but Caroline Kim, the founder or Maggie Buckley (she's an EDS powerhouse, has been involved in many different EDS organizations over time) would be great people to connect with to discuss forwarding potential clients.
Cyndi Cyndi Eide 21 day ago
Hi Rachel. I recently started taking clients in need of surgical companion and/or medical travel logistics services. My specialty is with patients needing craniocervical fusion, Chiari decompression, tethered cord, styloidectomy, vascular decompressions as I have experienced those myself. I recently retired and am able to travel with those needing companionship. I am not sure if I can share my website here, new to GNA and so grateful! Cyndi Eide