Entrepreneur Hub General
This community space is for discussing patient advocacy entrepreneurship topics that are broader, more general, or do not fit into the other categories.
WELCOME to PA360! Please introduce yourselves!
ShaTonga Ramirez
2 days ago
My name is ShaTonga, and I come from a mental health and social services background with over 25 years of experience. I’ve worked with youth, families, adults, and the elderly, mainly in case management, care coordination, and intensive family-based work. A lot of my experience has been supporting individuals with complex needs, helping them stay stable in the community, and working with families to navigate systems that can feel overwhelming.
My interest in patient advocacy also comes from personal experience. Supporting my mother through her healthcare journey really showed me how challenging it can be to navigate care, even with a background in this field. That experience pushed me to move more into advocacy and focus on helping individuals and families better understand and manage their care.
I’m currently working toward my certification in patient advocacy and building my own practice. I’m looking forward to connecting with others here and continuing to grow in this work.
Ginger Watko
7 days ago
Melina Oien
7 days ago
My name is Melina Oien. I am a BCPA and hold a master’s degree in Health Advocacy from Assumption University. I’m a staff member at GNA, one of your admins here, and an independent patient advocate. Like many at GNA, my role spans a wide range of work—from program development and design, to building and managing outreach and partnership relationships, to supporting our Patient Advocacy Liaisons with more complex or extraordinary cases within the Advocacy Support Center.
In my direct 1:1 work, I focus on medical guidance, with a tendency towards pediatric and young adult patients with complex care needs, particularly rare disease navigation and management (from an advocacy perspective, not as a provider). The individuals I support often have needs beyond direct medical care that still significantly impact their health, so my work frequently overlaps with disability advocacy—connecting people to DSHS and other community resources, and helping navigate, expedite, and appeal within those systems too.
It’s a wild ride sometimes, but I truly love what I do. I'm always happy to connect, and am looking forward to seeing the community grow!
Legal protections on privacy? How to shield clients?
Val Barschaw
6 days ago
First allow me to preface that I am not giving legal advice — that is for attorneys only. But I have a healthy background in the legal system and my belief is that you can be deposed...period. You do not have doctor/patient protection, clergy/congregant protection or attorney/client protection.
Here's what I would do, if it were me and I truly believed the client and I are a good fit: Find a good attorney to represent you (not your prospective client) and ask them to advise you if a «Non-Disclosure Agreement» (NDA) could be executed between you and the prospective client such that you would have the ability to refuse to answer any questions posed in a deposition based on the NDA. You would still have to appear if you get a subpoena (and they «should» provide a stipend for your trouble if you have to travel over a certain number of miles...at least that's the case in my State).
So, bottom-line is — ask an attorney and go from there.
Best wishes. Let me know how this turns out for your.
Val Barschaw
Author/Speaker/Advocate… and former Superior Court Clerk
Question for Fellow Independent Advocates: How Long Do You Maintain Client Files?
So Many Types of Patient Advocates, So Little Understanding of Why We All Matter
Avrom Fox
22 days ago
My core philosophy remains unchanged: to be a true champion for patients and their families as they navigate an increasingly complex healthcare system. Many who need advocacy simply cannot access it due to cost. For me, the greatest reward has always been human, not financial, and I do everything I can to work with Medicare clients and expand access for those who might otherwise go without support.
I also believe our services should not be excessive. I can not relate to fees of even 200.00 or more. At the same time, I respect advocates for whom this is their primary profession—they must charge fair, realistic, and justifiable rates.
I am encouraged that Umbra is helping create pathways for Medicare reimbursement. While modest, it represents an important step forward—one we should all support.
Jeff Byars
23 days ago
I had to Etch-a-Sketch my business model almost immediatly when I opened my independent advocacy practice. My LLC was formed in February 2020 and the world closed down in March due to Covid. But the changes I made allowed me to serve clients all over the USA remotely. Over the years my business has evolved. The unforseen changes I had to implement early, have benefited throughout the years. Being able to adapt to client's needs is something I continue with to this day.
Leona Wells
23 days ago
The more I explored advocacy, the more I realized how broad our work truly is. We can support almost anyone, in so many different situations, and I worried that defining my services too narrowly might limit how clients see their own needs.
That’s why I offer a short, free consultation. It gives me space to ask questions clients may not think to ask, listen to their concerns, and highlight support they may not realize an advocate can provide. That brief conversation often brings clarity for both of us.
Elder Attorney's
Val Barschaw
1 month ago
If you have a know someone who works at a law firm you want to approach, take them to coffee or lunch and ask what the firm needs most? Listen to what pain points they have that you can help fix and begin there.
Having worked in law firms, I tried to imagine what would happen if someone come into the office seeking referrals. The only thing I could envision is if you have a professional brochure of your services (you know the kind you can put in a little display) that you may be able to set that in a waiting room area where one of their clients may pick it up and reach out to you. But only after you have shown the firm — it will help the firm.
Many lawyers are hesitant to make referrals...period. (But they love receiving them.)
Not meaning to sound negative, but until you can show them how you can help them, there is little reason to have a relationship.
A good relationship will lead to good referrals. Best wishes.
AnnMarie Cross
1 month ago
Taking the BCPA Certification Exam?
Val Barschaw
1 month ago
Business Model & Awareness Challenges
Morgan Kelley
2 months ago
I do this part time, about 10 hours a week for context. My business is 3.5 years old. My clients mainly find me through GNA and word of mouth/referrals.
I offer a free inital consultation to make sure it's a good fit for everyone. There have been a few times where the free consut doesn't lead anywhere for me, and that's okay.
I do know some folks have built referral channels through building relationships with proivders direclty, or through marketing to care facilities.
AnnMarie Cross
3 months ago
As we move from 'pre-launch' to really driving traffic to the site, I so hope you get a TON of response. I'm certainly eager to see it.
Let’s Talk Entrepreneurship
Victoria Killian
4 months ago
Melina Oien
4 months ago
I opened an LLC. Although I am not actively building out my client list, as most of my time is spent working for GNA, but I often have kept a small client list.
The best resources along the way have been fellow advocates, who generously have shared their «what worked for me, what didn't»s, encouraged me to keep going and not be intimidated by the business aspect of ..well, running a business, and who willingly have shared their professional expertise when a case felt too big, or perhaps had an aspect I wasn't as comfortable with as the rest of the case. It gave me lived experiences that showed me just how invaluable having a community of advocate colleagues can be.
Icu helper!
AnnMarie Cross
4 months ago
Thank you so much for sharing this incredibly compelling story. I'm so very sorry for that patient; I can imagine that terror she was feeling, and am heartbroken for her.
Thank you so much for the work that you do in the county hospital.
Thinking of you, and that patient, today,
AnnMarie






