Medical Guidance Condition-Specific Questions and Resources Connective Tissue Disorders (EDS & friends)
I'm Full! Posting to Connect and Get a List for Referrals
Hi! I am FULL. Very full. Likely won't have space again for clients till sept or oct, and launching online courses soon for EDSEers. I'd like to... See More
643 views
9 comments
Mel Randle
4 days ago
If they are in chicago or IL I'd love to help
Elizabeth Schmidt
28 days ago
Hi Rachel, I have some openings. All my clients have chronic conditions, and more than a few have hEDS in addition to other health issues. In addition, I myself have POTs, fibromyalgia, Lupus, Secondary mast cell, and likely hEDS. So I deeply understand what those with chronic conditions are going through. Please feel free to reach out to me at elizabeth@StraightfromtheHeartPA.com or 442-777-3251.
Cyndi Eide
1 month ago
Hi Rachel. I recently started taking clients in need of surgical companion and/or medical travel logistics services. My specialty is with patients needing craniocervical fusion, Chiari decompression, tethered cord, styloidectomy, vascular decompressions as I have experienced those myself. I recently retired and am able to travel with those needing companionship. I am not sure if I can share my website here, new to GNA and so grateful! Cyndi Eide
The Truth About EDS: A Doctor's Experience with Medical Dismissal with Linda Bluestein
Dr. Linda Bluestein shares her extraordinary medical and personal journey through the underrecognized world of connective tissue disorders... See More
1 350 views
A Brief Primer on Mast Cell Activation Syndrome and Mediators
FROM: Center for Complex Neurology, EDS & POTS ostSonpred203s.Patients with MCAS (Mast Cell Activation Syndrome) may experience numerous... See More
1 383 views

