Survivor Support General
This community space is for discussing survivor support advocacy topics that are broader, more general, or do not fit into the other categories.
Are you thinking about working with rare disease patients?
I had the opportunity several weeks ago to sit on a panel for HealthAdvocateX's xCenter on Rare Disease. We had some great conversations about what... See More
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2 months ago
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Helping HSD/EDS Patients Transition from Survivor to Supporter - from the EDS Society!
I am excited to share this unique small class opportunity to learn about supporting patients with Ehlers Danlos Syndrome / Hypermobile Spectrum... See More
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