Survivor Support

Peer Mentor Advocates Who Share Their Experience and Guide Others Through Recovery.

Are you thinking about working with rare disease patients?

I had the opportunity several weeks ago to sit on a panel for HealthAdvocateX's xCenter on Rare Disease. We had some great conversations about what... See More
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Fighting for Answers: The Journey from Patient to Advocate

Click HERE to watch this podcast episode on Patient Advocacy Now!  this episode, Victoria Killian shares her decades-long journey navigating... See More
Fighting for Answers: The Journey from Patient to Advocate
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Helping HSD/EDS Patients Transition from Survivor to Supporter - from the EDS Society!

I am excited to share this unique small class opportunity to learn about supporting patients with Ehlers Danlos Syndrome / Hypermobile Spectrum... See More
Helping HSD/EDS Patients Transition from Survivor to Supporter - from the EDS Society!
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From Survivor To Supporter: Explore Turning Your Lived Experiences Into Advocacy

We hope you find this recent blog post a helpful starting point to learn about the Survivor Support specialty within Independent Patient Advocacy... See More
From Survivor To Supporter: Explore Turning Your Lived Experiences Into Advocacy
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