Survivor Support

Peer Mentor Advocates Who Share Their Experience and Guide Others Through Recovery.

Can we manage our neurology through effective communications?

When Life Shifts, Start With the Story You Tell Your Body Something changed. A contract ended. A visa renewal stalled. A diagnosis arrived, or... See More
Can we manage our neurology through effective communications?
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69 views
AnnMarie AnnMarie Cross 3 days ago
Thanks for sharing!

Are you thinking about working with rare disease patients?

I had the opportunity several weeks ago to sit on a panel for HealthAdvocateX's xCenter on Rare Disease. We had some great conversations about what... See More
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2 570 views
fnfOzvSR fnfOzvSR fnfOzvSR 9 months ago
1

Fighting for Answers: The Journey from Patient to Advocate

Click HERE to watch this podcast episode on Patient Advocacy Now!  this episode, Victoria Killian shares her decades-long journey navigating... See More
Fighting for Answers: The Journey from Patient to Advocate
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1 338 views

Helping HSD/EDS Patients Transition from Survivor to Supporter - from the EDS Society!

I am excited to share this unique small class opportunity to learn about supporting patients with Ehlers Danlos Syndrome / Hypermobile Spectrum... See More
Helping HSD/EDS Patients Transition from Survivor to Supporter - from the EDS Society!
1 like
1 448 views

From Survivor To Supporter: Explore Turning Your Lived Experiences Into Advocacy

We hope you find this recent blog post a helpful starting point to learn about the Survivor Support specialty within Independent Patient Advocacy... See More
From Survivor To Supporter: Explore Turning Your Lived Experiences Into Advocacy
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1 508 views