Seeking a Mentor- Parkinson's specialization

Congratulations on launching your business and thank you for becoming a patient advocate. I am a nurse and after many years of advocating from the bedside, I just recently started my own practice as well. I have yet to have a client that is not a friend or family member so I may not be able to offer you much mentorship but I would be happy to chat about ideas or goals for your practice.

I am new as well to Advocacy but 40 years previous business knowledge. That is I owned my own place during that time. It would be easier for you to just call me at 513-673-6987

D. John Bishop

Hi! I have not had a patient, but I do have a friend currently about a year out from diagnosis. They have a yearly Parkinson's conference. We went last year and it was interesting and some great resources and physician's that gave us some great information. If you are in Florida… or come to visit! The 2027 Navigating Parkinson's Symposium is January 10,2027 at the Jewish Community Center, 522 N Howard Ave. Tampa Fl. 33606 ( www. jewishtampa.com) It is free and they will set a deadline for RESERVATIONS. They might have it streaming online… I am not certain. It was GREAT last year!

Tracy, Thank you for mentioning the symposium, I am in SWFL and hadn't heard of it before. I just registered and saw it also has a virtual attendance option which is great for anyone is interested that may not be able to attend in person

Hello Annie:

What are you looking for in terms of a mentor?

My background is close to 10 years (1/2027 will be 10) as a registered nurse who, from that perspective, has always advocated for my patients, and I do have experience with loved ones who have Parkinson's Disease as well as Progressive supranuclear palsy (PSP) and related neuromuscular and neurodegenerative diseases.

I'm relatively new as an independent patient advocate and have my BCPA exam scheduled for Saturday, 10/10.

I've written the following articles that may be helpful:

* compassioncrossing.info/how-to-identify-end-stage-parkinsons-for-hospice-admission/

* compassioncrossing.info/understanding-parkinsons-disease-a-guide-for-families/

* compassioncrossing.info/parkinsons-vs-alzheimers-key-differences-explained/

* compassioncrossing.info/navigating-parkinsons-disease-a-compassionate-guide-to-advance-care-planning-palliative-care-and-hospice-support/

Please do know that my personal business — Compassion Crossing, LLC — at compassioncrossing.info/ covers more than advocacy, and since I don't accept insurance, it is very sporadic for me to obtain clients. Most of my clients to date have been seeking help with value-based advance care planning (which is very different from the traditional method), and I just started working as a 1099 healthcare advocate for Solace Health.

HIPAA and personal privacy always matter, so I'm not sure how mentorship would work.

Please let me know if you have any questions.

Thank you.

Hi Annie

I am a former SLP and now advocate. Have a good bit of experience with Parkinson’s patients. If you have questions feel free to reach out
Have you checked your local Parkinson’s organizations? I’m sure you have as you helped your mom

Kind regards
Angie Galatas
Medical Advocacy Plus