Hello from San Francisco: Pancreatic Patient Advocate
Hello everyone, I'm James Anderson, a Pancreatic Patient Advocate in San Francisco. I am a long-term Whipple procedure survivor with exocrine pancreatic insufficiency, and for more than 15 years I have managed my own complex care and my father's across UCSF, Stanford Cancer Center, Sutter Health, and outside labs.
My specialty is the medical binder: one organized, chronological record of every hospital, lab, scan, and medication, with a two-page summary on top. I also help with appointment preparation, insurance and specialty pharmacy problems, and updates for out-of-town family. I work in person in San Francisco and by phone and video in all 50 states.
I would love to connect with advocates who work with pancreatic cancer, GI conditions, or complex post-surgical care, and I am happy to trade referrals. My site is pancreaticpatientadvocate.com. Glad to be here.
Could i gently suggest you repeat your intro in the intros post? it is VERY welcome here. it just may also get more eyes on it within thatpost:
gnanow.org/community/taking-business-to-next-level/general-tbnl/91-welcome-to-pa360-please-introduce-yourselves.html
If interested, you can pick a meeting time at www.care-champions.com/networking
link.gethealthstrategix.com/widget/bookings/colleague-connection-call
I'd love to connect. While I don't specialize in pancreatic cancer, I did work in a hands-on patient care clinical role for two year in gastroenterology and I have multiple personal lived experiences with complex post-surgical care.
Heres a link to my calendar if you'd like to chat: calendly.com/rebecca-wholestoryadvocacy/fellow-advocate-meeting