Jessina Graham

My path into patient advocacy grew out of seeing healthcare from three perspectives: clinician, patient, and parent. As a nurse practitioner in internal medicine and endocrinology, I learned how much good care depends on recognizing patterns across systems. Then I became the complex patient and experienced how easily important details can disappear across years of records and multiple specialists. Some of my deepest roots in advocacy came from my son. Because I was his mother, I could not diagnose or manage his care. What I could do was observe carefully, organize his history and recognize when something needed further evaluation. That advocacy helped him receive a POTS diagnosis before he developed the more typical symptom pattern. It gave him time to understand what was happening and make choices about his future. That experience reinforced what I had already learned through my own illness: patients and families often hold important pieces of the story, and those pieces become much more useful when someone helps organize them clearly. Today, I help patients organize records, prepare for specialist visits, identify unanswered questions, and communicate complex histories more effectively.

B.S., Zoology - University of Oklahoma B.S., Nursing - University of Oklahoma Health Sciences Center M.S., Nursing, Family Nurse Practitioner - University of South Alabama

Experience with: *Ehlers-Danlos syndrome (EDS/hEDS), hypermobility spectrum disorder (HSD), generalized joint hypermobility *POTS, dysautonomia, orthostatic intolerance, orthostatic hypotension, hyperadrenergic POTS *Mast cell activation syndrome (MCAS/MCAD) *Small fiber neuropathy (SFN), autonomic neuropathy *ME/CFS, post-exertional malaise (PEM), Long COVID/PASC, post-viral illness *Gastroparesis and gastrointestinal dysmotility *CVID, immune dysregulation, Sjögren’s syndrome, autoimmune and neuroimmune illness *Endocrine disorders, adrenal and thyroid disorders, neuroendocrine conditions *ADHD, autism, neurodivergence, migraine, and complex multisystem presentations *Orthopedic and musculoskeletal care, including ACL and labral injuries, splinting, orthopedic surgery, hip/knee replacement, and post-operative/ICU care *Longitudinal medical-record review, medical timelines, specialist summaries, and appointment preparation *Medication and treatment-response tracking; identifying gaps and unanswered questions in fragmented care *Medical literature/PubMed research and specialist identification based on published case reports, case series, or research *SSDI/SSI, disability advocacy, medical-evidence organization, chart and diagnostic review *Health insurance denials and appeals, prior authorization issues, and clinician-to-insurer peer-to-peer review requests *Medical bill review and auditing, financial-assistance programs, billing disputes, and patient billing rights *Medical-record disputes, requests for corrections or amendments, and healthcare-record addenda *Healthcare navigation and coordination across multiple specialists *Family advocacy and pediatric POTS/dysautonomia *Clinical background in internal medicine, endocrinology, infectious disease, orthopedics, and critical care *Dysautonomia International Conference presenter; scientific peer reviewer

• I offer a FREE Initial Consultation
• I offer TeleAdvocacy Service
• I am insured
• My geographical area of practice is In-person advocacy available in the Madison, Wisconsin area. Tele-advocacy available throughout the United States and, when appropriate, internationally.