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1 month ago
This is a great question! I'm immunodeficient and though I'm on treatment, there is still a real possibility that I will be seriously ill at some point during patient's advocacy. The way I deal with this is by being completely open about it from the start and throughout. I let my patients know that this is something to be expected and offer to help them find someone new (through GNA for example) if they need. Instead of apologizing when I am inevitably ill, I instead thank them for their understanding. Most patients appreciate this candor and are very understanding. Some need to transfer (though I've had several come back, stating that they prefer the genuine empathy of an advocate who knows what they are going through personally). I'm also quite up front about my part time schedule and firm on it. I only work 10:00 — 4:30 and make exceptions in only dire circumstances.
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1 month ago
Hi! Welcome to the survivor advocacy club John! I'd be happy to have a conversation to see if I can help you out. Want to send me a direct message?
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Mallory commented on Websites
1 month ago
This ^^^^ I have a chronic illness myself and limited capacity. I prefer to use my energy on patient facing stuff instead of the business admin side of things and Umbra is fantastic! They got me connected to AnnMarie and I'm super excited to be part of this community now.
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1 month ago
J/K just downloaded the tool and the first paragraph explains it "“Vibe coding” may sound like Silicon Valley hype, but behind the jargon is a practical game-changer for healthcare advocates. It means describing, in plain English, what you want a digital tool to do and letting AI write the software syntax. You provide the clinical insight and workflow logic; AI handles the coding." This is pretty amazing stuff. I'm generally not an AI fan, given it is being used for generative stuff a lot nowadays, but this is pretty amazing!
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1 month ago
Hi all! Mallory from the Virginia side of the DMV. I work primarily with complex, chronically ill patients and love a medical mystery! Feel free to reach out to me directly if you have a weird one — I might have some resources or suggestions!