Search by the «eds» tag
Blood patch in Vancouver Washington
I have a complex client with EDS and a mixed CSF disorder who needs a blood patch as soon a possible. She has been leaking for more than a... See More
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Cranial and Axial Instability Resource In CT. / NY: OneNeuroSpineHealth
Hello Everyone, Upright imaging can be an important tool for people with suspected cervical spine instability or alignment issues and yet, getting... See More
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Rachel Garvin
10 days ago
I would love to be considered for a scolarship. I don't currently have health isurance. I was diagnosed with CCI/AAI before records were electronic.
AnnMarie Cross
14 days ago
Donna — THANK YOU SO MUCH for sharing this information!!!
This is such a huge need. we as the EDS community are so excited to hear about this progress. thanks for sharing!
This is such a huge need. we as the EDS community are so excited to hear about this progress. thanks for sharing!
Potential new way to take cromolyn sodium
Hi all! If you have MCAS patients (especially those with concurrent ME/CSF) you might want to check out recent case study series out of Hopkins... See More
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AnnMarie Cross
1 month ago
I know patients using this approach. I understand it is expected to be less effctive because some of the cromolyn is too close to meals. but people who can't do 4oz at a time or have otherchallenges around the normal dosing.
I take mine in gatorade (can't do striaght water) but do the 4 oz liquid to 1/2 tube cromolyn 4x daily which works for me.
I take mine in gatorade (can't do striaght water) but do the 4 oz liquid to 1/2 tube cromolyn 4x daily which works for me.
Helping HSD/EDS Patients Transition from Survivor to Supporter - from the EDS Society!
I am excited to share this unique small class opportunity to learn about supporting patients with Ehlers Danlos Syndrome / Hypermobile Spectrum... See More
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