first — please see the new post I just put into 'advocate referral needed' — that has some overlap to your experience (but is pediatric) or perhaps you know an advocate you would suggest I consider adding to the client's short list?
second — would LOVE you to start a conversation in any of several possible spaces — in 'insurance & billing" on working with medicare appeals; in medical guidance sharing advice or better yet a thought provoking discussion about some area of complex healthcare.
We would love you to start a conversation about your areas of expertise — whether in the special care and aging space about our providign advocacy for our aging population, or ehre in medical guidance general that is informative — or better yet opens a discussion — about caring for all of us dysautonomics in the world (i'm an O.H. patient and my daughter is a hypertensive non-hyperadrenergic POTS patient)!
Laura,
Thank you again for being involved so early in our site's development!
Our membership could really benefit from learning from you about working with the VA system, with tricare, and caring for those seniors who have served out country.
Could I encourage you to start a thread in the «caring for those with special needs' space inside of 'special care and aging' — either educating fellow advocates on the basics of the VA system, or better still asking a thought provoking question to open discussion about supporting this vulnerable population who deserves the very best from our country and their healthcare system, but often do not get it?
Marc, Your niche as a senior home safety specialist would likely be really fascinating to many of our advocates in the special care and aging space. Could i encourage you to start a post in that area, likely under 'senior care' — to help folks understand what does that mean exactly, and also when might an advocate who has a client in your region consult or contract with you to support that or other specific skillsets you bring?
Jean,
Your team does such amazing, fascinating work. In the entrepreneur hub, if you're game, we would love to hear from you in the 'special care and aging' space on any topic you'd like to share! The work your nonprofit team does is so critical, so important.
Rita,
It was such a pleasure meeting you last month!
Could I encourage you to start a conversation about EOLD, MAID, VSED, or NODA? The «special care & aging» space «caring for those with special needs» would be a great place for those conversations. MANY of our membesr have little to know knowledge of any of those acronyms, so you could start hter.e Or you could ask some thought provoking questions to open dialogue about how to support a client who has made one of these decisions, but their family or even their clinical team do not support it?
Victoria,
A pleasure to see you here, and thank you for all you do in our share chronic conditions communities.
We specifically added a specialty area — in medical guidance, in 'specific conditions' is 'connective tissue disorders (EDS & friends). We made this space specifically for specialists like you to help those who are less familiar in our space, and also to let Zebra advocates talk to each other with indepth, complex questions that might 'get lost' (do 'get lost') in general forums lke the old facebook groups.
So many who know a bit about the hCTD world, for example, know little to nothing about how complex gastroparesis really is, or its interplay with its comorbids like MCAS. We'd love to hear your thoughts there, or to encourage conversation on that topic.
I would like to encourage you to get involved in the 'entrepreneur hub' now that we're officially launched. Share information about your BCPA study materials — or better yet, start a Q&A about the BCPA there! Encourage newbies to ask questions that help them feel prepared to even take the step of signing up for the exam (I get these questions EVERY day), and show the type of knowledge and information you've gathered for this program.
Or, same category, provide an overview of AI tools, or ethical AI use in advocacy — ideally with a thought provoking question that invites real dialogue.
We're thrilled to have your voice here, and very much want to hear it.
We would LOVE for you to start a conversation here — share info about when to lean into/get a consult from a CCRN/CFRN? describe what your credentials are and when they matter? talk about emergency transportation medicine and how you are involved there? Your voice is so important here, and we'd love for you to share your wisdom or even better to ask a thought provoking question that gets others involved.
Kimberlie,
Thank you for your incredible support of the GNA team.
I would love for you to start a conversation in one of the spaces for us!
My impression is that you have a strong lean into discharge planning and transitions out of the hospital. Would you choose a space, and start a conversation about discharge planning? or a conversation about helping your client learn to self advocate? Either share some of your knowledge or, ideally, ask a thought provoking question that drives conversation?
We love hearing your voice in the FB group. Would love it here!
Jessica,
Thrilled to see you here! Thank you for jumping in so early.
I would LOVE you to start a thread in one of hte spaces — whether medical guidance or special care and aging.
What should an advocate know whose client has moved from CKD to needing a kidney transplant? what other critical issues around transplant medicine might other advocates not realize?
When should an advocate lean into to someone with critical care experience? Are you open to coaching others if the situation is less complex; being a consultant and working on a case together? when might it be best for esp an early-career advocate to suggest a 'warm hand off' to their client to a CCRN or similar critical care/ER/ICU experienced nurse or NP like you?
As an administrator, you have such an interesting perspective of the healthcare system that many of our advocates may not have.
Could i encourage you to start a thread in the 'medical guidance' 'general' space — sharing tidbits other advocates may not know? or ask a thought provoking question to help others think about how to work WITH the hospital resources that are available to ease their client's challenges? or start a conversation about «Unsafe Discharge»?
Could i encourage you to drop into the «insurance & billing» space and start a conversation? Maybe share some insights for folks who don't tackle such complex, large claims? Maybe provide some guidance on when is the right time to bring in a specialist like you, to collaborate on a complex patient case? Or ask an impactful question that would encourage conversation with experts such as yourself for those who are newer in this realm?
The advocacy support center often gets requests for information or help from complex behavioral health or psychiatric meds clients. We provide them a curated list of advocates from the GNA site. Having this additional information about your background will help my team know to add you to those curated lists.
Could I encourage you to drop into the medical guidance, general space, and share some wisdom about helping a patient understand their psych meds? I know it is something advocates run into every day, who don't have your level of knowledge here.
Would love for you to start a conversation in the special care & aging space. Do you have questions for advocates who have even more time in this space than you? Would you like to share a 'win' experience that might be encouraging to early career advocates who are wondering what kind of impact they can make?
We'd love to hear from you!
We built out a space JUST for supporting hCTD patients including ehlers danlos. I'd love to have you drop in that space, and either ask a question to open discussion with other hCTD — aware advocates, or share a success tory that might help advocates who are just starting out supporting these types of clients to know what's possible.
Anne, thank you so much for your incredible support of GNA, including your work with our blog!!!
Could I encourage you to start a post for us, and help others learn from your knowledge?
Lots of early career advocates dont even KNOW that coaching exists. Would you like to start a post in the 'entrepreneur hub' and just describe an interesting success you had coaching a fellow advocate? or describe what your coaching program looks like, what sorts of background do you work with (I know some coaches only coach fellow nurses; some only clinicians; others coach only in certain areas like insurance or billing)?
I suspect a lot of advocates do not know what a CLNC is, or when they might really benefit from consulting with a CLNC on a case they are handling or when they might want to locate a CLNC or similar credentialed advocate to provide their client the option of a 'warm hand-off' to an advocate better suited for their complex case.
Could I nudge you into writing a post for us in «medical guidance» «general» — about the kinds of places where your CLNC becomes important? (I'd also love to see a blog post on the topic!)
first — please see the new post I just put into 'advocate referral needed' — that has some overlap to your experience (but is pediatric) or perhaps you know an advocate you would suggest I consider adding to the client's short list?
second — would LOVE you to start a conversation in any of several possible spaces — in 'insurance & billing" on working with medicare appeals; in medical guidance sharing advice or better yet a thought provoking discussion about some area of complex healthcare.
THANKS for being here!
We would love you to start a conversation about your areas of expertise — whether in the special care and aging space about our providign advocacy for our aging population, or ehre in medical guidance general that is informative — or better yet opens a discussion — about caring for all of us dysautonomics in the world (i'm an O.H. patient and my daughter is a hypertensive non-hyperadrenergic POTS patient)!
Thank you again for being involved so early in our site's development!
Our membership could really benefit from learning from you about working with the VA system, with tricare, and caring for those seniors who have served out country.
Could I encourage you to start a thread in the «caring for those with special needs' space inside of 'special care and aging' — either educating fellow advocates on the basics of the VA system, or better still asking a thought provoking question to open discussion about supporting this vulnerable population who deserves the very best from our country and their healthcare system, but often do not get it?
Your team does such amazing, fascinating work. In the entrepreneur hub, if you're game, we would love to hear from you in the 'special care and aging' space on any topic you'd like to share! The work your nonprofit team does is so critical, so important.
It was such a pleasure meeting you last month!
Could I encourage you to start a conversation about EOLD, MAID, VSED, or NODA? The «special care & aging» space «caring for those with special needs» would be a great place for those conversations. MANY of our membesr have little to know knowledge of any of those acronyms, so you could start hter.e Or you could ask some thought provoking questions to open dialogue about how to support a client who has made one of these decisions, but their family or even their clinical team do not support it?
A pleasure to see you here, and thank you for all you do in our share chronic conditions communities.
We specifically added a specialty area — in medical guidance, in 'specific conditions' is 'connective tissue disorders (EDS & friends). We made this space specifically for specialists like you to help those who are less familiar in our space, and also to let Zebra advocates talk to each other with indepth, complex questions that might 'get lost' (do 'get lost') in general forums lke the old facebook groups.
So many who know a bit about the hCTD world, for example, know little to nothing about how complex gastroparesis really is, or its interplay with its comorbids like MCAS. We'd love to hear your thoughts there, or to encourage conversation on that topic.
WELCOME!
gnanow.org/community/medical-guidance/room2-mg/connective-tissue-disorders-eds-friends
Thank you so much for your support of GNA!
I would like to encourage you to get involved in the 'entrepreneur hub' now that we're officially launched. Share information about your BCPA study materials — or better yet, start a Q&A about the BCPA there! Encourage newbies to ask questions that help them feel prepared to even take the step of signing up for the exam (I get these questions EVERY day), and show the type of knowledge and information you've gathered for this program.
Or, same category, provide an overview of AI tools, or ethical AI use in advocacy — ideally with a thought provoking question that invites real dialogue.
We're thrilled to have your voice here, and very much want to hear it.
Thank you so much for being here!
We would LOVE for you to start a conversation here — share info about when to lean into/get a consult from a CCRN/CFRN? describe what your credentials are and when they matter? talk about emergency transportation medicine and how you are involved there? Your voice is so important here, and we'd love for you to share your wisdom or even better to ask a thought provoking question that gets others involved.
Thank you for your incredible support of the GNA team.
I would love for you to start a conversation in one of the spaces for us!
My impression is that you have a strong lean into discharge planning and transitions out of the hospital. Would you choose a space, and start a conversation about discharge planning? or a conversation about helping your client learn to self advocate? Either share some of your knowledge or, ideally, ask a thought provoking question that drives conversation?
We love hearing your voice in the FB group. Would love it here!
Thrilled to see you here! Thank you for jumping in so early.
I would LOVE you to start a thread in one of hte spaces — whether medical guidance or special care and aging.
What should an advocate know whose client has moved from CKD to needing a kidney transplant? what other critical issues around transplant medicine might other advocates not realize?
When should an advocate lean into to someone with critical care experience? Are you open to coaching others if the situation is less complex; being a consultant and working on a case together? when might it be best for esp an early-career advocate to suggest a 'warm hand off' to their client to a CCRN or similar critical care/ER/ICU experienced nurse or NP like you?
Thanks so much for joining!
As an administrator, you have such an interesting perspective of the healthcare system that many of our advocates may not have.
Could i encourage you to start a thread in the 'medical guidance' 'general' space — sharing tidbits other advocates may not know? or ask a thought provoking question to help others think about how to work WITH the hospital resources that are available to ease their client's challenges? or start a conversation about «Unsafe Discharge»?
We want your perspective and your voice.
Could i encourage you to drop into the «insurance & billing» space and start a conversation? Maybe share some insights for folks who don't tackle such complex, large claims? Maybe provide some guidance on when is the right time to bring in a specialist like you, to collaborate on a complex patient case? Or ask an impactful question that would encourage conversation with experts such as yourself for those who are newer in this realm?
Such a pleasure to meet you.
The advocacy support center often gets requests for information or help from complex behavioral health or psychiatric meds clients. We provide them a curated list of advocates from the GNA site. Having this additional information about your background will help my team know to add you to those curated lists.
Could I encourage you to drop into the medical guidance, general space, and share some wisdom about helping a patient understand their psych meds? I know it is something advocates run into every day, who don't have your level of knowledge here.
Would love for you to start a conversation in the special care & aging space. Do you have questions for advocates who have even more time in this space than you? Would you like to share a 'win' experience that might be encouraging to early career advocates who are wondering what kind of impact they can make?
We'd love to hear from you!
We built out a space JUST for supporting hCTD patients including ehlers danlos. I'd love to have you drop in that space, and either ask a question to open discussion with other hCTD — aware advocates, or share a success tory that might help advocates who are just starting out supporting these types of clients to know what's possible.
Could I encourage you to start a post for us, and help others learn from your knowledge?
Lots of early career advocates dont even KNOW that coaching exists. Would you like to start a post in the 'entrepreneur hub' and just describe an interesting success you had coaching a fellow advocate? or describe what your coaching program looks like, what sorts of background do you work with (I know some coaches only coach fellow nurses; some only clinicians; others coach only in certain areas like insurance or billing)?
We'd love to hear from you.
I suspect a lot of advocates do not know what a CLNC is, or when they might really benefit from consulting with a CLNC on a case they are handling or when they might want to locate a CLNC or similar credentialed advocate to provide their client the option of a 'warm hand-off' to an advocate better suited for their complex case.
Could I nudge you into writing a post for us in «medical guidance» «general» — about the kinds of places where your CLNC becomes important? (I'd also love to see a blog post on the topic!)