The advocacy support center often gets requests for information or help from complex behavioral health or psychiatric meds clients. We provide them a curated list of advocates from the GNA site. Having this additional information about your background will help my team know to add you to those curated lists.
Could I encourage you to drop into the medical guidance, general space, and share some wisdom about helping a patient understand their psych meds? I know it is something advocates run into every day, who don't have your level of knowledge here.
Would love for you to start a conversation in the special care & aging space. Do you have questions for advocates who have even more time in this space than you? Would you like to share a 'win' experience that might be encouraging to early career advocates who are wondering what kind of impact they can make?
We'd love to hear from you!
We built out a space JUST for supporting hCTD patients including ehlers danlos. I'd love to have you drop in that space, and either ask a question to open discussion with other hCTD — aware advocates, or share a success tory that might help advocates who are just starting out supporting these types of clients to know what's possible.
Anne, thank you so much for your incredible support of GNA, including your work with our blog!!!
Could I encourage you to start a post for us, and help others learn from your knowledge?
Lots of early career advocates dont even KNOW that coaching exists. Would you like to start a post in the 'entrepreneur hub' and just describe an interesting success you had coaching a fellow advocate? or describe what your coaching program looks like, what sorts of background do you work with (I know some coaches only coach fellow nurses; some only clinicians; others coach only in certain areas like insurance or billing)?
I suspect a lot of advocates do not know what a CLNC is, or when they might really benefit from consulting with a CLNC on a case they are handling or when they might want to locate a CLNC or similar credentialed advocate to provide their client the option of a 'warm hand-off' to an advocate better suited for their complex case.
Could I nudge you into writing a post for us in «medical guidance» «general» — about the kinds of places where your CLNC becomes important? (I'd also love to see a blog post on the topic!)
Good morning, Val! WE MADE IT! :) Thank you for your support through this whole process.
Could I encourage you to open a conversation? Share some of your experience supporting a heart transplant patient? You are welcome to share info on your book so long as there isn't a long series of just marketing posts. Better yet, tell us why you wrote it, tell us what you hope folks will gain from it.
the 'medical guidance' 'general' space is likely a good starting point for it, but feel free to go wherever feels right to you!
We would love if you would start a conversation in one of our many topic areas. Youve got such a broad range of issues going on!
Are there things in your daughters' journey either others could learn from or you have questions about? (If her rare disorder happens to be connective tissue related, we even have a space JUST for those conversations:
If it isn't, the conversations are still very welcome in the general room of the medical guidance space.
Do you have insight to share about managing a complex family dynamic while advocating for your own family? or questions for those who have already done it? the «special care & aging» and «senior care» space is ideal for those conversations.
I would love if you did me a HUGE favor. Click into the «insurance and billing» discussion rooms, and get some conversation started! Share a complex win you've had recently; share some guidance on the wildly changing insurance landscape that the average advocate who just touches a small amount of ins&bill issues may not know.
We're thrilled you are here; we'd love your help in opening up conversation.
Lynn,
Thank YOU for the amazing content you are adding into the «medical guidance — condition-specific — limb loss» room. It is so informative and so important. THANK YOU for being a founding member in this community who is taking the time to share your knowledge.
Pam and Linda, WELCOME!!! Thank you for saying hi!
Please consider going into the «special care & aging» section, under general, and share information about your podcast there.
Then please consider starting a conversation. Share some wisdom for someone early-career into supporting aging adults. Or start a meaningful conversation with others who work in this space.
Make the space yours — for all of you in this specialty. We want your voice!
Could I encourage you to start a thread in the 'special care and aging' section about just that? How do you help a solo ager maintain independence? How do you help them understand what's going on with their healthcare and be resilient? How do you help them change lifelong habits that can help them stay in their homes longer or be independent longer?
(You could put it into 'senior care' or 'general' — would fit either place.)
Could I encourage you to go to the «special care and aging» section, and start a conversation? Would you be open to starting a thread there? Here are some ideas (which you could also write as blogs instead!) I’d love to hear your take on something like:
* 'The 3 biggest mistakes families make when transitioning a loved one to managed care' or
* 'How the Florida care landscape is changing for seniors.' or
* 'Beyond the Brochure: 5 Clinical Red Flags to Look for When Touring a Memory Care Unit.' Families often look at the decor; we need your help knowing what to look for in the care."
* Or, ask a difficult question that you and other experienced gerontology specialists wrestle with every day.
* Or 'Strategies for Communicating Complex Healthcare Decisions to Patients with Diminishing Capacity'?
Morgan — I cross posted to the private FB group, per our chat. Hoping it'll encourage some folks to come this way and respond for you. In case you don't see them, I'll copy any responses here.
Lynn,
This content is amazing — easy to consume, makes so much sense, so helpful.
Also — it makes huge sense to me. As a rare genetics patient with extreme hypermobility in my feet (among other joints) — we have had to do a lot of work to protect the «not bad foot» while having to rehab the «bad» side.
Thank you again for sharing such great information.
Morgan,
Had your question come in to the ASC from a potential client, here is some information we would've shared that MIGHT give you a few things to look into as you look for a partner in this case. You may already know all this, and apologies if so.
New York State Marketplace & Immigration Advocacy
Because the parents are over 65 and have permanent resident status, they may fall into a specific category in New York where state-funded expansions may offer more options than federal programs. Notably, as of 2024, New York has expanded Medicaid eligibility to include residents age 65 and older regardless of status.
GetCoveredNYC
An NYC program that provides free, one-on-one specialist assistance to help residents enroll in health insurance regardless of status.
Phone: Call 311 (Ask for «GetCoveredNYC»)
Web: www.nyc.gov/site/mayorspeu/programs/getcoverednyc.page
The New York Immigration Coalition (NYIC)
Leads the «Health Care for All» campaign and provides high-level advocacy and guidance on immigrant health rights in NY.
Phone: (212) 627-2227
Web: www.nyic.org
Community Health Advocates (CHA)
Helps New Yorkers navigate the healthcare system, handle insurance denials, and find low-cost care options.
Phone: (888) 614-5400
Web: www.communityhealthadvocates.org
Empire Justice Center
Provides legal advocacy and technical assistance regarding immigrant eligibility for New York state health benefits.
Phone: (585) 454-4060
Web: empirejustice.org
Preventative Care & Aging Support (NYC)
If the family returns to the US and are still waiting to resolve insurance issues, NYC offers «bridge» programs that guarantee access to preventative services and primary care for those who cannot afford private plans.
NYC Care
A healthcare access program that guarantees low-cost and no-cost services through NYC Health + Hospitals for those who don't qualify for insurance.
Phone: (646) 692-2273
Web: www.nyccare.nyc
Department for the Aging (NYC)
Connects older adults to community-based services and provides counselors who specialize in insurance for those 65+.
Phone: (212) 244-6469
Web: www.nyc.gov/site/dfta/index.page
I did a bit of digging in our directory to hopefully give you some starting points… I couldn't find anyone with obvious immigration background, but the specific insurance background for these 2 made me feel like there was a solid chance of support here.
Such a pleasure to meet you.
The advocacy support center often gets requests for information or help from complex behavioral health or psychiatric meds clients. We provide them a curated list of advocates from the GNA site. Having this additional information about your background will help my team know to add you to those curated lists.
Could I encourage you to drop into the medical guidance, general space, and share some wisdom about helping a patient understand their psych meds? I know it is something advocates run into every day, who don't have your level of knowledge here.
Would love for you to start a conversation in the special care & aging space. Do you have questions for advocates who have even more time in this space than you? Would you like to share a 'win' experience that might be encouraging to early career advocates who are wondering what kind of impact they can make?
We'd love to hear from you!
We built out a space JUST for supporting hCTD patients including ehlers danlos. I'd love to have you drop in that space, and either ask a question to open discussion with other hCTD — aware advocates, or share a success tory that might help advocates who are just starting out supporting these types of clients to know what's possible.
Could I encourage you to start a post for us, and help others learn from your knowledge?
Lots of early career advocates dont even KNOW that coaching exists. Would you like to start a post in the 'entrepreneur hub' and just describe an interesting success you had coaching a fellow advocate? or describe what your coaching program looks like, what sorts of background do you work with (I know some coaches only coach fellow nurses; some only clinicians; others coach only in certain areas like insurance or billing)?
We'd love to hear from you.
I suspect a lot of advocates do not know what a CLNC is, or when they might really benefit from consulting with a CLNC on a case they are handling or when they might want to locate a CLNC or similar credentialed advocate to provide their client the option of a 'warm hand-off' to an advocate better suited for their complex case.
Could I nudge you into writing a post for us in «medical guidance» «general» — about the kinds of places where your CLNC becomes important? (I'd also love to see a blog post on the topic!)
Could I encourage you to open a conversation? Share some of your experience supporting a heart transplant patient? You are welcome to share info on your book so long as there isn't a long series of just marketing posts. Better yet, tell us why you wrote it, tell us what you hope folks will gain from it.
the 'medical guidance' 'general' space is likely a good starting point for it, but feel free to go wherever feels right to you!
WELCOME!!! And thank you for saying hi!
We would love if you would start a conversation in one of our many topic areas. Youve got such a broad range of issues going on!
Are there things in your daughters' journey either others could learn from or you have questions about? (If her rare disorder happens to be connective tissue related, we even have a space JUST for those conversations:
gnanow.org/community/medical-guidance/room2-mg/connective-tissue-disorders-eds-friends
If it isn't, the conversations are still very welcome in the general room of the medical guidance space.
Do you have insight to share about managing a complex family dynamic while advocating for your own family? or questions for those who have already done it? the «special care & aging» and «senior care» space is ideal for those conversations.
Again, thank you for being here.
I would love if you did me a HUGE favor. Click into the «insurance and billing» discussion rooms, and get some conversation started! Share a complex win you've had recently; share some guidance on the wildly changing insurance landscape that the average advocate who just touches a small amount of ins&bill issues may not know.
We're thrilled you are here; we'd love your help in opening up conversation.
Thank YOU for the amazing content you are adding into the «medical guidance — condition-specific — limb loss» room. It is so informative and so important. THANK YOU for being a founding member in this community who is taking the time to share your knowledge.
Please consider going into the «special care & aging» section, under general, and share information about your podcast there.
Then please consider starting a conversation. Share some wisdom for someone early-career into supporting aging adults. Or start a meaningful conversation with others who work in this space.
Make the space yours — for all of you in this specialty. We want your voice!
Could I encourage you to start a thread in the 'special care and aging' section about just that? How do you help a solo ager maintain independence? How do you help them understand what's going on with their healthcare and be resilient? How do you help them change lifelong habits that can help them stay in their homes longer or be independent longer?
(You could put it into 'senior care' or 'general' — would fit either place.)
Could I encourage you to go to the «special care and aging» section, and start a conversation? Would you be open to starting a thread there? Here are some ideas (which you could also write as blogs instead!) I’d love to hear your take on something like:
* 'The 3 biggest mistakes families make when transitioning a loved one to managed care' or
* 'How the Florida care landscape is changing for seniors.' or
* 'Beyond the Brochure: 5 Clinical Red Flags to Look for When Touring a Memory Care Unit.' Families often look at the decor; we need your help knowing what to look for in the care."
* Or, ask a difficult question that you and other experienced gerontology specialists wrestle with every day.
* Or 'Strategies for Communicating Complex Healthcare Decisions to Patients with Diminishing Capacity'?
Thank you also for volunteering your time to support our bloggers!
This content is amazing — easy to consume, makes so much sense, so helpful.
Also — it makes huge sense to me. As a rare genetics patient with extreme hypermobility in my feet (among other joints) — we have had to do a lot of work to protect the «not bad foot» while having to rehab the «bad» side.
Thank you again for sharing such great information.
Do YOU know anyone able to do IN PERSON ONLY in this area?
Had your question come in to the ASC from a potential client, here is some information we would've shared that MIGHT give you a few things to look into as you look for a partner in this case. You may already know all this, and apologies if so.
New York State Marketplace & Immigration Advocacy
Because the parents are over 65 and have permanent resident status, they may fall into a specific category in New York where state-funded expansions may offer more options than federal programs. Notably, as of 2024, New York has expanded Medicaid eligibility to include residents age 65 and older regardless of status.
GetCoveredNYC
An NYC program that provides free, one-on-one specialist assistance to help residents enroll in health insurance regardless of status.
Phone: Call 311 (Ask for «GetCoveredNYC»)
Web: www.nyc.gov/site/mayorspeu/programs/getcoverednyc.page
The New York Immigration Coalition (NYIC)
Leads the «Health Care for All» campaign and provides high-level advocacy and guidance on immigrant health rights in NY.
Phone: (212) 627-2227
Web: www.nyic.org
Community Health Advocates (CHA)
Helps New Yorkers navigate the healthcare system, handle insurance denials, and find low-cost care options.
Phone: (888) 614-5400
Web: www.communityhealthadvocates.org
Empire Justice Center
Provides legal advocacy and technical assistance regarding immigrant eligibility for New York state health benefits.
Phone: (585) 454-4060
Web: empirejustice.org
Preventative Care & Aging Support (NYC)
If the family returns to the US and are still waiting to resolve insurance issues, NYC offers «bridge» programs that guarantee access to preventative services and primary care for those who cannot afford private plans.
NYC Care
A healthcare access program that guarantees low-cost and no-cost services through NYC Health + Hospitals for those who don't qualify for insurance.
Phone: (646) 692-2273
Web: www.nyccare.nyc
Department for the Aging (NYC)
Connects older adults to community-based services and provides counselors who specialize in insurance for those 65+.
Phone: (212) 244-6469
Web: www.nyc.gov/site/dfta/index.page
Thanks so much for the post!
I did a bit of digging in our directory to hopefully give you some starting points… I couldn't find anyone with obvious immigration background, but the specific insurance background for these 2 made me feel like there was a solid chance of support here.
1. Ruthlyn Noel-Joseph, Healthwiz Solutions. gnanow.org/advocates/ruthlyn-noel.html
2. Lisa Bayer, JD. gnanow.org/advocates/eldercare-expert-lisabayer-esq.html
3. Adria Gross. gnanow.org/advocates/adria-goldman-gross.html