AnnMarie Cross

Thanks so much for sharing your experience!

What a GREAT quote and an important conversation!

This is SUCH an important conversation. Thank you so much for bringing it here.

Mari- thanks so much for responding to me. I've passed your information on to the family.

Thank you so much. I'll put you in touch with Denise, who has been working with him. SOO appreciate your time, thank you.

Hi, Victoria! Unfortunately, I don't have a ton more details than what is above. I did provide them your name/profile already from my original search. These are the latest questions they've added:

Is the advocate prepared to lead a coordinated, multi-state search process (including building and narrowing a shortlist of residential options), or would they work more as a care coordinator / navigator alongside other resources?
Is the advocate typically involved in the placement process itself, including outreach and coordination with facilities?
Does the advocate have experience with cases that are primarily psychiatric in nature, where the individual is functionally independent?
Would the advocate typically handle benefits navigation (e.g., Medicaid), or work in parallel with other specialists?
—
If you would like to provide me a brief response to those questions, I can send it along to them to expand on the info I already provided for you.

Thanks for responding!

Thank you for asking such an important, complex question!

Gentle reminder — posts in the general areas of the community are visible aka «public» (if you think in FB terms) — so you may want to ask her to DM you for contact info, or use your GNA number.

Only posts in the «advocate referral needed» spaces are fully private and require GNA profile approval to even be READ.

Thank you so much for adding on some specific, helpful information.

Melina, thank you SO much for taking the time to respond with such incredible detail.

Thank you for such an incredibly indepth, detailed response. Your thoughtfulness, your time, your support are so appreciated.

Thanks so much for responding, Adam! Your experience sounds like a solid match.

Thanks so much for responding! I thought of you, but you didn't come up in my search since 'insurance&billing' isn't one of your two core specialties. I'm glad you saw the post!

welcome marilyn!

Loved meeting you recently! Thanks for being here.

So great to see you here!

Jackie,
Thank you so much for reaching out!

Here are several advocates that came up for my search with the combo of breast cancer and insurance&billing — in case there are issues around whether treatment is coded properly, etc.

1. Mary Denaro (survivor) gnanow.org/advocates/mary-denaro.html
2. Beth Dombrowski (survivor) gnanow.org/advocates/bethd-jd.html
3. Lola Ogunjobi (PharmD) (describes a breast cancer survivor case) gnanow.org/advocates/lolao.html
4. Marina Moroz-Day (breast cancer case) gnanow.org/advocates/marina-morozday.html

If you don't need the breast cancer case experience, if you'll share what state she's in, I'll gladly also provide names of folks in her area. Hopefully some of those folks will see this post and you can interact directly!

PS: Only GNA-listed advocates can see or respond here. You can click on their names to open their profiles on the GNA site or to message them directly from here!

Blaire,
How heartbreaking. How intense.

I've messaged Melina Oien in case she has any insights.

I'm going to reach out to a few other advocates to ask them if htey might weigh in… who have both ped's background AND TBI. If you feel like I could exclude the pediatric portion of the outreach, I can certainly widen this circle.

Zhane' Fugate
Rachel Garvin
Mari Pantoja-Smith
Anne Wienke

With your permission, I would screenshot the post and share it in the private FB group to try to drive more traffic to the convo here.

If you or any of your readers would like the list of agencies that GNA knows of/has spoken with who are accepting Medicare and have advocates working as contractors with them, I'm happy to provide it.