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12 hours ago
hi kathaleen! same q here — did you find a solution for this one? if so could you update the ehding to start with CLOSED REQUEST?
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12 hours ago
hi noel! is this one rseolved? if so would you mind editing the title of the post to start with CLOSED REQUEST
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12 hours ago
hi kathleen! sam equestion on this one. did you get this solved? If so, would you mind editing the post and cange the title to start with CLOSED REQUEST?
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12 hours ago
hi! is this one solved? if so, would yo mind editing the title to say «CLOSED REQUEST»?
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3 days ago
Welcome, John! Thanks for reaching out! this is a GREAT offer!!!
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11 days ago
My understanding is it matters if the patient is SSI or SSDI, but not certain.
+1
11 days ago
I'll add in to say that Biberk is who many advocates mention in the prior conversations on this topic as well.

And also double down on what Victoria said…
those advocates who are NP or PA tend to have the most complex challenges in figuring out insurance.
those who are MD/DO/DPT also may have some specific requirements

I don't and can't give any guidance on this topic; just sharing the themes from prior conversations.
+1
12 days ago
THANK YOU FOR SHARING DALIA!
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18 days ago
Hi, Kathaleen! I hope you get a lot of response.
In searching that region, these advocates came up:
1. teri dreher frykenberg
2. maura lessard
3. katie krupka
4. mary-anne schelb
5. noel harrington (who also volunteers with the GNA team)!
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18 days ago
Thanks so much for being here Kim, and also for being a great volunteer to GNA's Advocacy Support Center team!
+2
18 days ago
Dalia,
First, i'm so incredibly sorry for what your family went through. NO ONE should ever be treatd that way, for any reason whatsoever.

Second, YES! THANK YOU for saying what is so often unsaid — that weight is about so much more than willpower.

My youngest was a competitive bicyclist. She regularly went, literally 100 miles in a day on her bike. When we were seeing docs about her post-exertional malaise and her orthostatic intolerance, EVERYONE tried to blame her weight. When i explained how fit the girl was, then they would blame overtraining and yet also somehow come back to it being due to her weight. Drove me CRAZY and drove her away from medical care for a long time.

THANK YOu for saying what needs to be said.
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18 days ago
Sasha,
THANK YOU for such a great introduction! We're so glad you're here. we hope you find helpful information and connection with us here.

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20 days ago
Super helpful, thanks so much, Angela!
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20 days ago
Happy to assist!
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22 days ago
Thanks so much for replying!
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22 days ago
also, here are advocates within 75 miles of that location that may have some guidance for you:
gnanow.org/advocates?search_type=speciality_id&speciality_id=18&locations=Columbus%2C+OH+43085%2C+USA&distance=75
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22 days ago
Here are adovcates who are m ost likely to have those connections:

Angie Galatas, SLP gnanow.org/advocates/medi.html
Shlomit Liberty, SLP gnanow.org/advocates/shlomit.html
Hannah Klassy, SLP of Dementia Dimensions gnanow.org/advocates/hannah-klassy.html
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22 days ago
some suggestions for you that i've interacted with personally in this topic area…
anne wienke
megan karanfil
Rachel lee davis
kristina Kelly

if you dont care about location at all, i can give you a MUUUCH larger list.

if you can let me know if she is a trifecta patient (eds/pots/mcas) that can narrow the list more specifically.

i hope others reply here fo ryou also!