Hi, laurie! WELCOME and thanks for making the welcome post!
two quick suggestions — if you're looking for oncology advocates to help you make connections, could I suggest either changing the title/ heading at the top of this post to clearly say that, or a new post with that specific question being SUPER clear? (If you need help putting a heading on the post, just let me know and I can do it for you.)
Second, your photo seems to have zoomed in crazy close on whatever the image was, and isn't visible. could you edit your post and replace it?
Thanks for starting the thread, Andrew! We're very glad you're here.
Are there approaches you have taken to help your senior clients be able to interact with their smart devices at all? for example, to confirm appointments via text? What resources do your clients mostly find manageable — if there are any patterns you see? (would love you to edit the post and expand the thought a bit more, if you're game, in hopes of having others join in or learn from your experience!)
Amy, Thanks so much for joining and sharing about your background and practice.
Could I encourage you to start a new thread in medical guidance about any of the unique areas of your practice that might interest others? or begin a conversation about the unique community of Southern California healthcare?
Welcome Cheryl! We're so glad you're here. We would love if you would start a conversation that utilizes your specific knowledge and expertise, perhaps helping others understand how your DPT background is impactful in geriatric neuro cases or trauma recovery or post-ICU? Or opening a conversation with others about unique challenges in the healthcare community of the greater northwest?
Dana, thank you so much for telling us a bit about your practice and your history! We would LOVE for you to start a new thread, and share something about the particular needs or challenges of supporting cancer patients along their journey — within the «medical guidance — Condition-Specific Questions and Resources» space. Perhaps something like — what do you wish other advocates knew about supporting an existing client who suddenly encounters a cancer diagnosis? or open a dialogue about particular challenges unique in the oncology space?
Thank you so much for the detailed info, Anne. I've shared it with the family.
A small suggestion — adding «certified diabetes educator» likely would've brought you into the first search results I sent him. So would references to T1D. (I know it's tough, you can't put every condition in the world in your profile — or we'll assume you're a generalist and don't have extensive knowledge in that space. But specific keywords to areas of your specialty like T1D would pull you into the complex searches we do for clients like this one.)
first — please see the new post I just put into 'advocate referral needed' — that has some overlap to your experience (but is pediatric) or perhaps you know an advocate you would suggest I consider adding to the client's short list?
second — would LOVE you to start a conversation in any of several possible spaces — in 'insurance & billing" on working with medicare appeals; in medical guidance sharing advice or better yet a thought provoking discussion about some area of complex healthcare.
We would love you to start a conversation about your areas of expertise — whether in the special care and aging space about our providign advocacy for our aging population, or ehre in medical guidance general that is informative — or better yet opens a discussion — about caring for all of us dysautonomics in the world (i'm an O.H. patient and my daughter is a hypertensive non-hyperadrenergic POTS patient)!
Laura,
Thank you again for being involved so early in our site's development!
Our membership could really benefit from learning from you about working with the VA system, with tricare, and caring for those seniors who have served out country.
Could I encourage you to start a thread in the «caring for those with special needs' space inside of 'special care and aging' — either educating fellow advocates on the basics of the VA system, or better still asking a thought provoking question to open discussion about supporting this vulnerable population who deserves the very best from our country and their healthcare system, but often do not get it?
Marc, Your niche as a senior home safety specialist would likely be really fascinating to many of our advocates in the special care and aging space. Could i encourage you to start a post in that area, likely under 'senior care' — to help folks understand what does that mean exactly, and also when might an advocate who has a client in your region consult or contract with you to support that or other specific skillsets you bring?
Jean,
Your team does such amazing, fascinating work. In the entrepreneur hub, if you're game, we would love to hear from you in the 'special care and aging' space on any topic you'd like to share! The work your nonprofit team does is so critical, so important.
Rita,
It was such a pleasure meeting you last month!
Could I encourage you to start a conversation about EOLD, MAID, VSED, or NODA? The «special care & aging» space «caring for those with special needs» would be a great place for those conversations. MANY of our membesr have little to know knowledge of any of those acronyms, so you could start hter.e Or you could ask some thought provoking questions to open dialogue about how to support a client who has made one of these decisions, but their family or even their clinical team do not support it?
Victoria,
A pleasure to see you here, and thank you for all you do in our share chronic conditions communities.
We specifically added a specialty area — in medical guidance, in 'specific conditions' is 'connective tissue disorders (EDS & friends). We made this space specifically for specialists like you to help those who are less familiar in our space, and also to let Zebra advocates talk to each other with indepth, complex questions that might 'get lost' (do 'get lost') in general forums lke the old facebook groups.
So many who know a bit about the hCTD world, for example, know little to nothing about how complex gastroparesis really is, or its interplay with its comorbids like MCAS. We'd love to hear your thoughts there, or to encourage conversation on that topic.
I would like to encourage you to get involved in the 'entrepreneur hub' now that we're officially launched. Share information about your BCPA study materials — or better yet, start a Q&A about the BCPA there! Encourage newbies to ask questions that help them feel prepared to even take the step of signing up for the exam (I get these questions EVERY day), and show the type of knowledge and information you've gathered for this program.
Or, same category, provide an overview of AI tools, or ethical AI use in advocacy — ideally with a thought provoking question that invites real dialogue.
We're thrilled to have your voice here, and very much want to hear it.
two quick suggestions — if you're looking for oncology advocates to help you make connections, could I suggest either changing the title/ heading at the top of this post to clearly say that, or a new post with that specific question being SUPER clear? (If you need help putting a heading on the post, just let me know and I can do it for you.)
Second, your photo seems to have zoomed in crazy close on whatever the image was, and isn't visible. could you edit your post and replace it?
Are there approaches you have taken to help your senior clients be able to interact with their smart devices at all? for example, to confirm appointments via text? What resources do your clients mostly find manageable — if there are any patterns you see? (would love you to edit the post and expand the thought a bit more, if you're game, in hopes of having others join in or learn from your experience!)
Could I encourage you to start a new thread in medical guidance about any of the unique areas of your practice that might interest others? or begin a conversation about the unique community of Southern California healthcare?
A small suggestion — adding «certified diabetes educator» likely would've brought you into the first search results I sent him. So would references to T1D. (I know it's tough, you can't put every condition in the world in your profile — or we'll assume you're a generalist and don't have extensive knowledge in that space. But specific keywords to areas of your specialty like T1D would pull you into the complex searches we do for clients like this one.)
first — please see the new post I just put into 'advocate referral needed' — that has some overlap to your experience (but is pediatric) or perhaps you know an advocate you would suggest I consider adding to the client's short list?
second — would LOVE you to start a conversation in any of several possible spaces — in 'insurance & billing" on working with medicare appeals; in medical guidance sharing advice or better yet a thought provoking discussion about some area of complex healthcare.
THANKS for being here!
We would love you to start a conversation about your areas of expertise — whether in the special care and aging space about our providign advocacy for our aging population, or ehre in medical guidance general that is informative — or better yet opens a discussion — about caring for all of us dysautonomics in the world (i'm an O.H. patient and my daughter is a hypertensive non-hyperadrenergic POTS patient)!
Thank you again for being involved so early in our site's development!
Our membership could really benefit from learning from you about working with the VA system, with tricare, and caring for those seniors who have served out country.
Could I encourage you to start a thread in the «caring for those with special needs' space inside of 'special care and aging' — either educating fellow advocates on the basics of the VA system, or better still asking a thought provoking question to open discussion about supporting this vulnerable population who deserves the very best from our country and their healthcare system, but often do not get it?
Your team does such amazing, fascinating work. In the entrepreneur hub, if you're game, we would love to hear from you in the 'special care and aging' space on any topic you'd like to share! The work your nonprofit team does is so critical, so important.
It was such a pleasure meeting you last month!
Could I encourage you to start a conversation about EOLD, MAID, VSED, or NODA? The «special care & aging» space «caring for those with special needs» would be a great place for those conversations. MANY of our membesr have little to know knowledge of any of those acronyms, so you could start hter.e Or you could ask some thought provoking questions to open dialogue about how to support a client who has made one of these decisions, but their family or even their clinical team do not support it?
A pleasure to see you here, and thank you for all you do in our share chronic conditions communities.
We specifically added a specialty area — in medical guidance, in 'specific conditions' is 'connective tissue disorders (EDS & friends). We made this space specifically for specialists like you to help those who are less familiar in our space, and also to let Zebra advocates talk to each other with indepth, complex questions that might 'get lost' (do 'get lost') in general forums lke the old facebook groups.
So many who know a bit about the hCTD world, for example, know little to nothing about how complex gastroparesis really is, or its interplay with its comorbids like MCAS. We'd love to hear your thoughts there, or to encourage conversation on that topic.
WELCOME!
gnanow.org/community/medical-guidance/room2-mg/connective-tissue-disorders-eds-friends
Thank you so much for your support of GNA!
I would like to encourage you to get involved in the 'entrepreneur hub' now that we're officially launched. Share information about your BCPA study materials — or better yet, start a Q&A about the BCPA there! Encourage newbies to ask questions that help them feel prepared to even take the step of signing up for the exam (I get these questions EVERY day), and show the type of knowledge and information you've gathered for this program.
Or, same category, provide an overview of AI tools, or ethical AI use in advocacy — ideally with a thought provoking question that invites real dialogue.
We're thrilled to have your voice here, and very much want to hear it.